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Carcinoma In Situ dignosis

1 week 7 hours ago #60057 by joea73
Its bit complicated.

I find the below talk by Dr.Kamat of MD Anderson answers some of questions you have.

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1 week 7 hours ago #60056 by sara.anne
Clyde, I am not sure of who was included in the groups either. But what I can tell you is that you are an individual, not a statistic! Your job is to get on with whatever it takes to beat this.

As someone who had CIS and went through BCG and maintenance and who has been cancer-free for over 14 years, all I can tell you is that you have a good chance of doing that also.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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1 week 7 hours ago #60055 by Clyde
If I understand the data correctly it looks like BCG treatment is considered successful in approximately 60 to 70% of the CIS of the bladder cases. I have also read that some folks start BCG treatment but have to stop it early for various reasons. I couldn't find any information on whether or not the folks that start but don't finish BCG treatments are included in the percentages that show whether or not BCG is successful. I have also read that patients that received the maintenance treatments had a even higher rate of success, but I'm not sure if those patients are factored into the 60-70% success rate of if they have even higher rates of success. Does anyone know how these percentages of success is determined and what patients are included?

Thanks,

Clyde

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2 weeks 4 days ago #59992 by joea73
Hi Clyde,

You had a small CIS removed. Technically speaking you don't have cancer now. In addition, your scheduled BCG treatment as proactive treatment as a precaution is intended to kill micro-size tumors somewhere in your bladder, which may exist because other parts of the bladder had been to the same toxin which might have caused
your CIS. I do not think you need to do anything now. What you may want to follow is the nutrition guide and exercise recommendation by the American Cancer Society.

https://www.cancer.org/healthy/eat-healthy-get-active/acs-guidelines-nutrition-physical-activity-cancer-prevention/guidelines.html

I do not know much about how ph level and cancer.
But, I am very concerned to play with the PH of our body. BCG treatment will utilize your own immune system to kill cancer cells. I have no idea what impact the change in PH level brings to your immune system. Also, I do not know if the change in PH level affects the side effects of BCG treatment. I strongly suggest that you will talk to the doctor first before you make such a change in diet.

Below is the link to MD Anderson, one of the best cancer centers in the world talks about diet, ph level and cancer.

https://www.mdanderson.org/cancerwise/alkaline-diet--what-cancer-patients-should-know.h00-159223356.html

Best wishes

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2 weeks 4 days ago #59989 by Clyde
I appreciate you sharing your knowledge and thoughts with me. I'm also glad to hear that your friends with CIS, that did not respond to BCG by itself were able to get good results by adding Interferon-alpha to BCG. I will keep this in mind just in case I need a "booster". I have read that there are several natural remedies that "could" slow down cancer growth. I read that cancer cells seem to flourish in an acidic environment and one suggestion is to get the ph level in your urine up to 7 or higher. This can be done via diet and the use of baking soda. I also read that aged garlic may slow down cancer growth as well. I may try some of these natural suggestions to see if they help while waiting the results of the BCG treatments. I don't think they can hurt.

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2 weeks 4 days ago #59988 by joea73
I know a few people whose CIS did not respond to BCG, then they were put on BCG + Interferon-alpha, and they have been NED over 3 years.

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