Update: Had my 3 month cystoscopy and cytology test and both were negative for cancer! Now I'll start my next round of maintenance BCG....#'s 16,17 & 18 for me.
The Dr did see some inflammation in the bladder from the BCG. So far I've tolerated the BCG well. Hopefully that will continue. It's amazing how BCG can work to stimulate your own body to get rid of CIS in the bladder. I'll never complain about any minor side effects from BCG. Definitely worth it!
I think it's standard procedure for them to do a follow-up turbt afterward. With this turbt, they typically look really closely at the area and sample anything remaining that looks suspicious. They also clean up the margins of the previous surgery. For me, there was a 6 week period between the 2 turbts - This gives it time to heal a bit, and for the swelling to decrease. It also allows some time for pathology of the biopsies.
The last time I had a cystoscopy (less than 2 weeks ago), my urologist took a couple biopsies. The sampling equipment looks like small alligator jaws, and I was able to watch on the monitor while the biopsies were taken. Subsequently, the areas were cauterized to prevent further bleeding. The whole thing was relatively painless, and I recommend it (as opposed to the complications of a turbt). Maybe they could do this for you, since there's not really been a formal diagnosis of CIS.