Carcinoma In Situ diagnosis

11 months 3 weeks ago #60127 by Clyde
Replied by Clyde on topic Carcinoma In Situ diagnosis
Completed my second BCG treatment today. No problems or issues. It actually seemed easier then the first treatment. This time I didn't have any bleeding. Only issue is the burning pain.

Before starting the BCG treatments I went to a new Uro=Oncologist for a second opinion. He was very thorough and did his own Cystoscopy as well as a cytology urine test. He said the Cystoscopy was negative. The cytology test came back as "suspicious" for malignant cells.

Hoping the BCG works to remove all suspicious cells!

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11 months 3 weeks ago #60108 by sara.anne
Replied by sara.anne on topic Carcinoma In Situ diagnosis
Great, Clyde! You are on the way to beating this.

The nurse was correct in that the side effects do tend to increase the more BCG treatments you have. Fortunately, this is exactly what you want to happen! The BCG is kicking up your immune system and your body is reacting. While it may be uncomfortable for you, we hope it is "more uncomfortable" for cancer cells!!

You've got this!!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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11 months 3 weeks ago #60107 by Clyde
Replied by Clyde on topic Carcinoma In Situ diagnosis
I had my first BCG treatment yesterday. It wasn't too bad. I didn't like the catheter but fortunately that process goes quickly. No problem holding the BCG for two hours. I did have burning when I urinated and I passed some blood and other 'particles". I drank a ton of water and gatorade to flush my bladder. Those symptoms only lasted about six hours. I did read somewhere that the other "particles" you pass are white blood cells clumped together, which probably means the BSG did what it was suppose to do. Hopefully the next five treatments will go as well as this one, but the nurse said sometimes the get tougher the more you have.

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1 year 1 week ago #60057 by joea73
Replied by joea73 on topic Carcinoma In Situ diagnosis
Its bit complicated.

I find the below talk by Dr.Kamat of MD Anderson answers some of questions you have.

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1 year 1 week ago #60056 by sara.anne
Replied by sara.anne on topic Carcinoma In Situ diagnosis
Clyde, I am not sure of who was included in the groups either. But what I can tell you is that you are an individual, not a statistic! Your job is to get on with whatever it takes to beat this.

As someone who had CIS and went through BCG and maintenance and who has been cancer-free for over 14 years, all I can tell you is that you have a good chance of doing that also.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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1 year 1 week ago #60055 by Clyde
Replied by Clyde on topic Carcinoma In Situ diagnosis
If I understand the data correctly it looks like BCG treatment is considered successful in approximately 60 to 70% of the CIS of the bladder cases. I have also read that some folks start BCG treatment but have to stop it early for various reasons. I couldn't find any information on whether or not the folks that start but don't finish BCG treatments are included in the percentages that show whether or not BCG is successful. I have also read that patients that received the maintenance treatments had a even higher rate of success, but I'm not sure if those patients are factored into the 60-70% success rate of if they have even higher rates of success. Does anyone know how these percentages of success is determined and what patients are included?

Thanks,

Clyde

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