Carcinoma In Situ diagnosis

1 year 6 months ago #60164 by sara.anne
Replied by sara.anne on topic Carcinoma In Situ diagnosis
My urologist laughed at the rolling around stuff. Said it was an "old wives' tale" and that just living and breathing was enough to coat the bladder with the BCG.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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1 year 6 months ago #60163 by Clyde
Replied by Clyde on topic Carcinoma In Situ diagnosis
Update: Completed my 4th round of BCG today. Fortunately, I didn't have any issue but a little burning which on lasted a few hours.

My only concern is that I always leave the medical center after the procedure to go to my own bed to roll around and flip sides every 15 minutes. My commute lasts about 30 minutes and I spend the rest of the two hours changing positions. It's more comfortable in my own bed but I'm giving up flipping over during the first 30 minutes. I'm not sure how everyone else does it or if I should just stay in the medical center for 2 hours and flip around. Anyone have an opinion on what is the best way to do this? Am I ok doing it this way?

Thanks!

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1 year 6 months ago #60141 by sara.anne
Replied by sara.anne on topic Carcinoma In Situ diagnosis
I have seen no evidence that any dietary supplements have any effect on bladder cancer. Before you invest in any such, please check with your doctor to be sure that they do not affect the pH or any other factor in the bladder such that they would interferes with your treatments.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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1 year 6 months ago #60140 by Clyde
Replied by Clyde on topic Carcinoma In Situ diagnosis
BCG treatment number 3 completed today. Just some burning for a few hours. No other issues.

I'm now looking into taking some natural supplements as another avenue to get rid of the bladder CIS. I have read that Aged Garlic Extract and broccoli sprouts can be effective. I searched but could find no info on whether these products help or impede BCG. Since they are both natural substances I will probably try them both. Has anyone else tried supplements?

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1 year 6 months ago #60128 by sara.anne
Replied by sara.anne on topic Carcinoma In Situ diagnosis
Glad your BCG is going well.

Wouldn’t worry over much about the cytology result. These tests just mean that “something “ should be checked, but they are notorious for giving false positives, indicating cancer when there is none.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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1 year 6 months ago #60127 by Clyde
Replied by Clyde on topic Carcinoma In Situ diagnosis
Completed my second BCG treatment today. No problems or issues. It actually seemed easier then the first treatment. This time I didn't have any bleeding. Only issue is the burning pain.

Before starting the BCG treatments I went to a new Uro=Oncologist for a second opinion. He was very thorough and did his own Cystoscopy as well as a cytology urine test. He said the Cystoscopy was negative. The cytology test came back as "suspicious" for malignant cells.

Hoping the BCG works to remove all suspicious cells!

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