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7 years 11 months ago #51194 by lotech35
Replied by lotech35 on topic Need advice
Wow Jay,

I had no idea guess i have some catching up to do! I'll bet i start maintenance next month, did you continue to work during cycle?
Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial.
Cancer has invaded muscle getting RC.

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7 years 11 months ago #51193 by Jay
Replied by Jay on topic Need advice
Yes, I completed my 3rd or 4th BCG maintenance(can't remember off hand) in March/April and had my cysto the beginning of May. All looked good, just the usual irritation inside the bladder the BCG causes. I'm scheduled again for another 3 week maintenance in August and another cysto the beginning of September. My Uro schedules 3 week maintenance for 2 years then goes to a 6 month maintenance. Hope all is well with everyone, this is a tough road to go down, physically and mentally!!! Jay

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7 years 11 months ago #51191 by lotech35
Replied by lotech35 on topic Need advice
That settles that, I will be asking for the maintenance cycle!
Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial.
Cancer has invaded muscle getting RC.

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7 years 11 months ago #51189 by Wichobel
Replied by Wichobel on topic Need advice
Sara Anne thank you I will check there
Diagnosed 01/13/2015. T1G3
1rst turb
2nd turb 02 /2015
6 BCG
Now 15 BCG. NED. Waiting

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7 years 11 months ago #51188 by Wichobel
Replied by Wichobel on topic Need advice
Hello I follow all the instruction my doctor gives to me. I will complete 27 dosis of BCG until 2017 if nothing weird happen. I will be check with cithoscopy each 3 months .now I will receive BCG each 6 months . But I would get a second opinion in the states. Let me know please where I can go. In Jacksonville or Florida zone. Thank you
Diagnosed 01/13/2015. T1G3
1rst turb
2nd turb 02 /2015
6 BCG
Now 15 BCG. NED. Waiting

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7 years 11 months ago #51187 by sara.anne
Replied by sara.anne on topic Need advice
Just a bit puzzled by the comment that "if I have to have it" with regards to maintenance BCG. There are multiple studies that have shown that maintenance increases the effectiveness of BCG significantly. I guess my question to my urologist would be "why SHOULDN'T I have it." About the only reason I can see would be if someone had life-threatening side effects. Just my humble opinion.

Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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