Need advice

7 years 11 months ago #51186 by sara.anne
Replied by sara.anne on topic Need advice
Wichobel, there is a branch of the Mayo Clinic in Jacksonville. I am not personally familiar with it, but it does appear that they do have expertise in bladder cancer

www.mayoclinic.org/patient-visitor-guide/florida

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
The following user(s) said Thank You: lotech35

Please Log in or Create an account to join the conversation.

7 years 11 months ago #51185 by lotech35
Replied by lotech35 on topic Need advice
Jay,

If my Doctor reccomends maintenance I will definetly have it. I read some where that some one didn't have to have it. but again if I need it I will have it. So you have completed maintenance cycle?

Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial.
Cancer has invaded muscle getting RC.

Please Log in or Create an account to join the conversation.

7 years 11 months ago #51179 by Wichobel
Replied by Wichobel on topic Need advice
Hello as I told you I live in Peru . I will go to the states next July . I would like to know where can I go . I need a second opinion I plan to to Jacksonville Florida or tell me any other place. I don t secure . This is not a problem . Please advice me where can I go. Thank you very much

Diagnosed 01/13/2015. T1G3
1rst turb
2nd turb 02 /2015
6 BCG
Now 15 BCG. NED. Waiting

Please Log in or Create an account to join the conversation.

7 years 11 months ago #51094 by Jay
Replied by Jay on topic Need advice
lotech35: You stated you'll see if you have the maintenance. I'm no expert on this subject, but why would you not have the maintenance? From what I've learned through my own experience and also from what I've read, the maintenance is the way to go. Jay

Please Log in or Create an account to join the conversation.

8 years 50 minutes ago #51086 by lotech35
Replied by lotech35 on topic Need advice
I have mine in june, then ill see if ill have maintenance. A little leary about it i still feel little tings and pings, but we will see great to hear from you guys!!

Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial.
Cancer has invaded muscle getting RC.

Please Log in or Create an account to join the conversation.

8 years 14 hours ago #51082 by Jay
Replied by Jay on topic Need advice
It's been a while since hearing from anyone. Glad things are going well for you Wichobel. I have my Cysto this coming Wednesday. I'll find out afterwards if I have one more 3 month treatment or if I'll be on a 6 month schedule. I'll just be on pins and needles until the lab results come in. Hope everyone continues to do well! Jay

Please Log in or Create an account to join the conversation.

Moderators: Cynthiaeddieksara.anne