RileyNH
Congrats on getting the first dose
So remember, the onco doc is typically treating the disease, not the patient (unfortunately).
Be sure to discuss with the nursing staff your concerns/needs/wants -they should be able to communicate 'better' with the doc. But the treatment is yours and you have every right to make the onco doc understands what is going on.
Oxybutynin didn't do much for me, we also tried Myrbetriq - but again not a lot of help. Although it may do better for you.
My guess is the dosage was supposed to be 80 cc's - but the research out there shows lower dosages have almost exactly the same outcome (about 2% difference).
Unsure if your facility has team treatment staff (nutrition/psych/etc.) - if you can access these people they too can assist with communication and as resources to meet your needs.
Some of what you describe (swelling, taint discomfort, etc.) is most likely due to the catheter, but also may be from the BCG as it is supposed to create an immune response.
You mention azo - looking it appears to be an OTC, so unsure just how effective it will be for this.
Final thoughts - the doc doesn't really have an understanding of urgency. They hear the word, but have never experienced it. Be sure you explain as fully as possible (' I have to use the toilet every 5 minutes or I am at a 6 of 10 pain scale, I feel like my bladder is not completely emptied after I pee, I only pee about 2 ounces of urine each time I go, I have difficulty initiating a stream, my stream is weak compared to before my TURBT, etc.) You get the point, one person may say they have urgency and it means they have to go every 3 hours as opposed the their normal every 6 hours, so making sure you explain with respect to your 'normal' will be beneficial.
Please keep us informed, keep the water flowing in, and the pee flowing out as this will help.
We are with you in spirit through your journey.