Recently diagnosed & scared

1 month 3 weeks ago #60385 by DonaldK
Replied by DonaldK on topic Recently diagnosed & scared
RileyNH

Glad to hear you have completed #4 - I find the rotation somewhat funny as the bladder is emptied prior to the instillation of the BCG.

Anyway - I found caffeine to be the major irritant for me - but I've been in recovery for 20 years now - so there is no way I am giving it up LOL

I have an NA beer every once in a while and have not had any issues from it regarding irritation - just as when I used to drink, makes me pee a lot - but then again everything does these days.

I agree with Sara Anne - give it a try and see what happens.

Happy New Year everyone, may 2021 be SOOOOOOOO much better than 2020.

Hi Grade T1 CIS

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1 month 3 weeks ago #60384 by sara.anne
Replied by sara.anne on topic Recently diagnosed & scared
Happy New Year, Riley!!

Everyone is different so I can only tell you my experience. I didn't live life much different while I was on BCG. A drink here or there never seemed to make any difference!!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
The following user(s) said Thank You: RileyNH

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1 month 3 weeks ago #60383 by RileyNH
Replied by RileyNH on topic Recently diagnosed & scared
Hi folks. Happy new year to everyone. Catching up on last week and I completed #4 BCG with no issues. Held it for 2 hours while rotating every 15-20 minutes with some lite dancing the last 30 to hold it. Lol. Had the typical urgency issues while drinking a ton of water the first 24 hours but only minor burning. #5 this upcoming Wednesday and almost there.

Quick question, although I have done a great job avoiding any bladder irritant over the past several months, carbonated, citrus, etc I was wondering about lite alcohol usage during BCG. Was looking to have a glass or two of wine. Would love a beer too but curious to anyone's thoughts or experience. In the past, before BCG, I would have two or three a week with no effects to my bladder.

Thank you in advance.

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2 months 19 hours ago #60358 by mikequestions
Replied by mikequestions on topic Recently diagnosed & scared

RileyNH wrote: Treatment #3 completed and successful. Full dose and 2 hour hold with rotations every 15-20 minutes.

Congrats to my buddy Mike on finishing #6 today!!!!!


Thanks for your support, Riley. I think we're so much better off going through this with each other!

It feels great to have completed #6! I'm looking forward to a break for a while. My scope is scheduled for 6 weeks from now.

Happy Holidays!

Mike

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2 months 1 day ago #60354 by RileyNH
Replied by RileyNH on topic Recently diagnosed & scared
Treatment #3 completed and successful. Full dose and 2 hour hold with rotations every 15-20 minutes.

Congrats to my buddy Mike on finishing #6 today!!!!!

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2 months 1 week ago #60326 by RileyNH
Replied by RileyNH on topic Recently diagnosed & scared
Thank you for the encouragement. The only thing stopping me from full celebration is the neuropathy pain. It started shortly after the first TURBT with pins & needles and now has progressed to foot pain and nerve burning on the lower back, legs and arms. The BCG treatments seemed to have made it worse. I did have it fully diagnosed by a neurologist and being treated with pain medication. Most likely something I will have to live with in exchange for being cancer free. Have a happy and safe holiday season.

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