Hi all, thank you in advance for your support and advice.
I am a 55 yr old male that had some urination issues In may 2020. My PCP went down the path of prostrate exam and PSA. Ultimately he recommended monitoring. In late July it happened again, urgent need with pain. I was referred to a urologist who did an evaluation and ruled out an infection. On 8/22 I had blood in my urine and was back at the urologist the next day. Had a CT scan which found a bladder tumor and then on 8/27 I had a cystoscopy that confirmed 3 small tumors. The CT scan showed no other tumors in any other location. My TURBT was done on 9/14, so less than 2 weeks ago, and I had a catheter for 2 days. The pathology finally came back on 9/21 with a diagnosis of high grade but not muscle invasive. Doctor said that there is still a 33% chance that it is in the muscle and a second TURBT is scheduled for 10/26, exactly 6 weeks after the first.
Besides some lingering urgency issues my urination is OK with no blood or cloudy since a day or two after the catheter was removed. I have drank a small pool of water.
Since the first cystoscopy on 8/27 I have had bad lower back and flank pain along with burning in the groin. Within the past week I have pins and needles in my hands and feet with feet cramping. I am trying to advocate for myself and seeking further evaluation or treatment but because it is non muscle invasive at the moment nobody wants to do more except wait till after the 2nd TURBT. It is such a helpless and frustrating feeling that there is more going on and I need to take action.
Thanks for listening. Very scared in NH
