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Recently diagnosed & scared

1 week 6 days ago #60386 by mikequestions
Hi Riley,

I will echo what others have suggested - give it a try!

For me, I cut back on alcholic beverages because I didn't want there to be a chance that it would thin my blood to the point that it may develop complications with bleeding. This was simply due to the fact that my urologist kept reiterating that it was normal to see blood (brown or red) during urination while undergoing BCG. This said, I didn't have any signs of bleeding, and was probably being overly cautious.

My 6th treatment was right before Christmas, so with New Years Eve right around the corner, I welcomed the new year with several glasses of champagne and welcomed the tears of joy and apprehension that surfaced because of it.

I wish you and everyone here a Happy and CANCER-FREE New Year!

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2 weeks 4 hours ago #60385 by DonaldK
RileyNH

Glad to hear you have completed #4 - I find the rotation somewhat funny as the bladder is emptied prior to the instillation of the BCG.

Anyway - I found caffeine to be the major irritant for me - but I've been in recovery for 20 years now - so there is no way I am giving it up LOL

I have an NA beer every once in a while and have not had any issues from it regarding irritation - just as when I used to drink, makes me pee a lot - but then again everything does these days.

I agree with Sara Anne - give it a try and see what happens.

Happy New Year everyone, may 2021 be SOOOOOOOO much better than 2020.

Hi Grade T1 CIS

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2 weeks 10 hours ago #60384 by sara.anne
Happy New Year, Riley!!

Everyone is different so I can only tell you my experience. I didn't live life much different while I was on BCG. A drink here or there never seemed to make any difference!!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
The following user(s) said Thank You: RileyNH

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2 weeks 10 hours ago #60383 by RileyNH
Hi folks. Happy new year to everyone. Catching up on last week and I completed #4 BCG with no issues. Held it for 2 hours while rotating every 15-20 minutes with some lite dancing the last 30 to hold it. Lol. Had the typical urgency issues while drinking a ton of water the first 24 hours but only minor burning. #5 this upcoming Wednesday and almost there.

Quick question, although I have done a great job avoiding any bladder irritant over the past several months, carbonated, citrus, etc I was wondering about lite alcohol usage during BCG. Was looking to have a glass or two of wine. Would love a beer too but curious to anyone's thoughts or experience. In the past, before BCG, I would have two or three a week with no effects to my bladder.

Thank you in advance.

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3 weeks 2 days ago #60358 by mikequestions

RileyNH wrote: Treatment #3 completed and successful. Full dose and 2 hour hold with rotations every 15-20 minutes.

Congrats to my buddy Mike on finishing #6 today!!!!!


Thanks for your support, Riley. I think we're so much better off going through this with each other!

It feels great to have completed #6! I'm looking forward to a break for a while. My scope is scheduled for 6 weeks from now.

Happy Holidays!

Mike

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3 weeks 3 days ago #60354 by RileyNH
Treatment #3 completed and successful. Full dose and 2 hour hold with rotations every 15-20 minutes.

Congrats to my buddy Mike on finishing #6 today!!!!!

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