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BCG with Interferon

3 months 1 week ago #54772 by cltyxx
Vince,

Thanks! I am going to have my 5th round this Friday and hope things will go smooth.

Take care!

Cltyxx

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3 months 1 week ago #54770 by VinceD
I had the exact same side effects you are feeling. By the time treatment #6 rolled around, I was only able to last about 1:15 instead of the full 2 hours. Azo and Oxybutinin helped. Don't be afraid to take Azo (Phenazopyridine), it can help the symptoms. I have even been taking it the last few days as I am still passing some blood from the biopsy. It brings relief and makes urinating a lot easier. When I was doing treatments I would take it after first voiding the BCG... My urologist told me you don't want to take it prior to treatment as it coats the lining of the bladder, but afterward was fine.

Keep up the fight!

Vince

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3 months 1 week ago #54765 by cltyxx
George and Alan,

Thanks! Things get better today after 2 days. Definitely, I want to preserve the bladder unless no other choices.

George, good luck on your cysto tomorrow!

Cltyxx

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3 months 1 week ago #54764 by George9
I had the same thing, Cityxx, they had me skip a week because I was so inflammed. The spasms are horrible, constant need to pee as you said, it does get better. I still have some spasms, and still urinate frequently, but not like while going through the treatments. I am having a cystcoscopy on Mon., and pending the results, will have to start another round of maintenance. I may have to have another surgery if the tumors have returned, and start all over again. I never had the fever and chills, but must be awful, along with the spasms, etc. Hope things settle down after you complete the series. It's something that we have no choice over, except have the bladder out, and I certainly don't want that.

Best to you,
George

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3 months 1 week ago #54763 by Alan
Cltyxx, Pretty normal side effects. The good news is, it shall pass.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
The following user(s) said Thank You: cltyxx

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3 months 1 week ago #54760 by cltyxx
Hi Vince/George,

Just finished my 4th BCG+ Interferon. Quite significant side effects as in the last few weeks:
1) painful/burning/frequent/urgent to pee;
2) with little blood, small blood clot or tissues (cannot distinguish)
3) flu/fever symptoms.

I think I had more of the side effects than just BCG alone. Do not know whether this is a good sign?
Stil 2 more rounds to go.

Thanks,

Cltyxx

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