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BCG with Interferon

1 month 2 weeks ago #55494 by cltyxx
Hi Vince,

I am going to start my maintenance pretty soon. Hope you feel better soon and it would be great to have no more treatments for half a year! We will be there!

Share with us some good news in August!

Cltyxx

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1 month 2 weeks ago #55492 by VinceD
Very happy for you! This is great news.

I completed my first round of maintenance treatments, 3x at the end of May. I thought I handled them well, but my bladder is just now starting to get back to feeling somewhat normal. If things stay clear, I won't have another treatment until November / December. Next Cysto is in August.

Best of luck to you!

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1 month 2 weeks ago #55491 by sara.anne
That is GOOD NEWS!!

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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1 month 2 weeks ago #55490 by cltyxx
Just want to provide an update.

I went for my Cysto this morning after finishing my 1st 6 round BCG+ Interferon in early March.

It is all clear for this time! I feel so relieved but I know there is a long way ahead...

Best wishes to everyone here!

Cltyxx
Diagnosed on 03/23/2017
TURBT#1 04/06/2017, Pathology report not conclusive
TURBT#2 05/26/2017, HG T1, No cancer found
BCG 6 treatments finished on 08/11/2017
Cysto: 11/14/2017 Biopsy: 11/27/2017 Still There!
TURBT #3 01/05/2018, No Cancer found
BCG+ Interferon 6 treatments finished on 03/02/2018
Csyto: 06/26/2018, clear!

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5 months 3 weeks ago #54772 by cltyxx
Vince,

Thanks! I am going to have my 5th round this Friday and hope things will go smooth.

Take care!

Cltyxx

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5 months 3 weeks ago #54770 by VinceD
I had the exact same side effects you are feeling. By the time treatment #6 rolled around, I was only able to last about 1:15 instead of the full 2 hours. Azo and Oxybutinin helped. Don't be afraid to take Azo (Phenazopyridine), it can help the symptoms. I have even been taking it the last few days as I am still passing some blood from the biopsy. It brings relief and makes urinating a lot easier. When I was doing treatments I would take it after first voiding the BCG... My urologist told me you don't want to take it prior to treatment as it coats the lining of the bladder, but afterward was fine.

Keep up the fight!

Vince

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