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BCG with Interferon

2 years 8 months ago #54765 by cltyxx
George and Alan,

Thanks! Things get better today after 2 days. Definitely, I want to preserve the bladder unless no other choices.

George, good luck on your cysto tomorrow!

Cltyxx

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2 years 8 months ago #54764 by George9
I had the same thing, Cityxx, they had me skip a week because I was so inflammed. The spasms are horrible, constant need to pee as you said, it does get better. I still have some spasms, and still urinate frequently, but not like while going through the treatments. I am having a cystcoscopy on Mon., and pending the results, will have to start another round of maintenance. I may have to have another surgery if the tumors have returned, and start all over again. I never had the fever and chills, but must be awful, along with the spasms, etc. Hope things settle down after you complete the series. It's something that we have no choice over, except have the bladder out, and I certainly don't want that.

Best to you,
George

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2 years 8 months ago #54763 by Alan
Cltyxx, Pretty normal side effects. The good news is, it shall pass.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
The following user(s) said Thank You: cltyxx

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2 years 8 months ago #54760 by cltyxx
Hi Vince/George,

Just finished my 4th BCG+ Interferon. Quite significant side effects as in the last few weeks:
1) painful/burning/frequent/urgent to pee;
2) with little blood, small blood clot or tissues (cannot distinguish)
3) flu/fever symptoms.

I think I had more of the side effects than just BCG alone. Do not know whether this is a good sign?
Stil 2 more rounds to go.

Thanks,

Cltyxx

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2 years 8 months ago #54745 by George9
Awesome, Vince!!!!

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2 years 8 months ago #54743 by cltyxx
Hi Vince,

Such a great news! I am so happy for you!

Cltyxx

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