I completed my first round of maintenance treatments, 3x at the end of May. I thought I handled them well, but my bladder is just now starting to get back to feeling somewhat normal. If things stay clear, I won't have another treatment until November / December. Next Cysto is in August.
I went for my Cysto this morning after finishing my 1st 6 round BCG+ Interferon in early March.
It is all clear for this time! I feel so relieved but I know there is a long way ahead...
Best wishes to everyone here!
Diagnosed on 03/23/2017
TURBT#1 04/06/2017, Pathology report not conclusive
TURBT#2 05/26/2017, HG T1, No cancer found
BCG 6 treatments finished on 08/11/2017
Cysto: 11/14/2017 Biopsy: 11/27/2017 Still There!
TURBT #3 01/05/2018, No Cancer found
BCG+ Interferon 6 treatments finished on 03/02/2018
Csyto: 06/26/2018, clear!
I had the exact same side effects you are feeling. By the time treatment #6 rolled around, I was only able to last about 1:15 instead of the full 2 hours. Azo and Oxybutinin helped. Don't be afraid to take Azo (Phenazopyridine), it can help the symptoms. I have even been taking it the last few days as I am still passing some blood from the biopsy. It brings relief and makes urinating a lot easier. When I was doing treatments I would take it after first voiding the BCG... My urologist told me you don't want to take it prior to treatment as it coats the lining of the bladder, but afterward was fine.