Had second TURBT in August, after 6 BCG treatments. Because of this, doc. combined the BCG with Interferon. Had a cystoscopy in November in the o.r. as a precaution if a TURBT was necessary. Thank God, the combination worked!! I am now scheduled for three more combo. treatments starting this Tues. and a f/u cystoscopy in February. We shall see, at least I had one good report, and pray that I will have many more. Wish the same for you.
How are things going there! Hope everything goes smoothly!
Diagnosed on 03/23/2017
TURBT#1 04/06/2017, Pathology report not conclusive
TURBT#2 05/26/2017, HG T1, No cancer found
BCG 6 treatments finished on 08/11/2017
Cysto: 11/14/2017 Biopsy: 11/27/2017 It came back!
TURBT #3 scheduled and then BCG + Interferon
Thank you for thinking of me. Glad that you made it through your treatments. I was told that two hours is ideal to hold it, but like you, have only been able to hold for 1 1/2 hours. I couldn't have my 3rd and 4th treatment due to a lot of blood and leukocytes in my urine. They thought I had a urinary tract infection, and they wouldn't do them. As it turns out, it's wasn't a u.t.i. after all. Both cultures showed no growth, and the doc. thinks this is just how it's going to be with me. After the treatment, I get some blood when urinating, but usually resolves itself it about a day and a half. So, I am having my 6th treatment on Thursday, had to make up for lost time, and then to the hospital for cystoscopy on 11/15. Doc. wants to do it there this time in case another tumor is there. I hate the thought of being put out again, but I guess it's better than waiting for a surgery appt. if I had the cystoscopy in the office.
LOTS of fatigue with this combo., and lots of spasms. I was going to try the AVO, but it said that there is a lot of side effects, and I didn't want to chance it.
Again, thanks so much for keeping in touch and giving me an update on you. I wish us both the best of luck. Please let me know the result of your cystoscopy after you have it.
Hi George, I was thinking you have completed your 6th treatment. I hope you are recovering well.
I finished mine on Friday. I will go back in for Cystoscopy on December 8th. I've had some cumulative effects with the BCG/Interferon, which have been uncomfortable. I was only able to hold the 6th treatment for about 1 hour 20 minutes before voiding. I've noticed more muscle and joint pain than I had with the first set of 6 BCG treatments.
I found that I have had more discomfort urinating this time around as well. I am hoping that is actually a good sign that they treatment in working. Been taking plenty of Azo and drinking a lot of water to flush things out.
Had the second treatment of BCG with interferon today. Same as last week, lots of bladder spasms and some blood. When I first went into the office, gave a urine sample, and it showed that I had some blood in the urine. She said that some doctors consider that a positive, like it's working to get rid of the junk. Maybe that's why you had the clots. I was told that fatigue is a common symptom, and I can attest to that from last week. Hoping it doesn't happen again.
Checked the post about the water. Thanks. I am going to take it easy from now on.