Neo bladder infections

13 years 5 months ago #35035 by Humpy
Replied by Humpy on topic Neo bladder infections
I just had one today. I had 53cc in my Neo, post void.
Under 100cc is a good thing.

Age 54
T1NOMX,Grade 3 Urothelial CIS (Carcinoma in Situ)
Neobladder 5/19/2009
Prostate Capsule Sparing
U of M Hospital, Ann Arbor, Michigan

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13 years 5 months ago #35030 by mmc
Replied by mmc on topic Neo bladder infections
It's a sonogram/ultrasound type of thing.

This looks like a newer version of what they used on me.
It's a commercial for the machine but it shows exactly what they do and how they get the results.



Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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13 years 5 months ago #35029 by Drew
Replied by Drew on topic Neo bladder infections
mmc wrote:
How to they do this scan for retention after you void? Is it an x-ray type of thing?

Drew

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13 years 9 months ago #33008 by Humpy
Replied by Humpy on topic Neo bladder infections
I had a HELL of an infection about two months post op, that put me in the hospital a week. I have not had one since. I cath every other day to 1, make sure I am empting completely, and 2, encourage my stricture to stay open. Though not the most pleasant thing, cathing takes a lot of questions out of the equation.


Jim

Age 54
T1NOMX,Grade 3 Urothelial CIS (Carcinoma in Situ)
Neobladder 5/19/2009
Prostate Capsule Sparing
U of M Hospital, Ann Arbor, Michigan

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13 years 9 months ago #32981 by mmc
Replied by mmc on topic Neo bladder infections
FarRed,

You should be getting checked as Patricia and Lee mentioned. There is a funnel machine that you pee into and it prints out a chart showing the flow and volume.

Then they use a scanner to see how empty your bladder is as soon as you are finished.

I have never had a neobladder bladder infection (but now I'm scared because I've said it writing so watch me come down with one tomorrow)!

However, whenever a different doctor sees me about something else and asks for urine test, they freak out. We, as folks with neobladders, can have our cultures show up looking like world war III, but unless there are other symptoms (fever, pain, malaise, etc.) it isn't really an infection. There is a difference between infection and colonization.

Anyway, you clearly have an INFECTION! Hope you cultures are done soon and they get you on the right antibiotics. If they put you on some heavy duty antibiotics you might want to eat yoghurt (if you can stomach that stuff) or get the acidophilus to take along with it because the antibiotics can kill all of the good bacteria that your gut needs.

Hope they get this under control soon. Sounds like maybe the course of antibiotics was not long enough and the infection is coming back stronger. I'm sure you know to always finish the course and not stop taking them just because you feel better, so my assumption is they may not be giving you high enough doses for a long enough time. This can cause the bacteria to build a resistance to the antibiotics and a different antibiotics is needed.

If your uro can't get it under control soon, then maybe an infectious disease specialist would be worth a visit.

Good luck with this! Sorry to hear about the continued problem.
Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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13 years 9 months ago - 13 years 9 months ago #32971 by LeeH
Replied by LeeH on topic Neo bladder infections
FarRed, If you are not peeing into a mechanical funnel that charts and measures volume and rate and get an ultrasound immediately following it EVERY G-DAMN TIME YOU WALK INTO THAT URO'S OFFICE, you got a hell of a problem with the care you are getting. Think about that UTI you got. Sorry man, but no f'n excuse for a dr. to let that go that far. You could think your are ok, but only emptying a portion. I'm two years out and I still get that test whenever I set foot in the office.

I haven't had a UTI now in about a year and a half. My tests showed I was retaining and they did a laser shot to open it up a bit.

Lee

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