Mike:
I seem to recall you had some complication that caused your neo to expand too far--1000cc?
Anyway, had another infection last month that landed me in ER--excruciating pain, a half day in hell. I'm still not certain what it was, but at least an infection and partial blockage. They tell me it probably wasn't a stone, but from stories I've read/heard, sounds awfully similar.
The doc's first word was “self-cath”. He wants me to cath 2-3 time/day. Seems drastic, and I almost passed out trying to do it anyway. Since the problem is voiding, I'd think I should be concentrating on THAT. I developed a hernia three months ago from pushing too hard, incorrectly I'd say, so I eased up for a while--bad decision. After the ER visit I think I've gotten better at it. I'm still waiting for the home scanner. If I half to cath, I might as well just run a stoma to the neo.
I'm not sure what a normal stream is like anymore. Lee's suggestion of scanning every visit and perhaps lasering the opening sounds more promising.
Does anyone pee as strong as they did pre-neo?
My first urologist scanned every visit; I'm not sure why these two don't. I'm reluctant to change doctors midstream--these are the guys who did the surgery. I'm reminded of the principle that no one cares about your health as much as you do. My dealings with the military health care system is that you have to tell the doc what you want done. Perhaps that applies to the civilian system too.
Chris