Hwg,
Sorry to hear about your husband's diagnosis. Where are you located? Is your husband scheduled for chemo and cystectomy (bladder removal)?
As George mentioned, getting to the right surgeon is a VERY BIG DEAL in terms of outcomes.
You've come to the right place. People here have a lot of experience and knowledge (much of it first hand and even more from research that we've done).
You (and he) are NOT alone. We're here for you. Ask any questions you may have and we'll do our best to answer or at least point a direction.
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...