New here, looking for support for husband with BC

One year, still cancer free, still taking the mustard seed.

Hello all, it has been a while since I posted here. Wanting to let you all know that we had the last surgery and afterwards my husband started taking mustard seed capsules which I make for him. This idea was based on a post elsewhere here. It's only been about six months, but so far his cystoscopies are negative. I'll keep you all posted on this as we move forward. At this point it could just be business as usual and there's no way to guess if the mustard seed is helping at all. But if he makes it to two years, we are going to feel as though perhaps it is helping. If he doesn't, we plan to step up the dose and see if that works.

Thanks, Pat. I'll give the info about Dr. Carroll to my husband and talk with him about this. I appreciate everyone's assistance today. It helps unmuddy the waters a bit

Dr. Naftulin has some pretty good credentials for prostate cancer and he trained and did his fellowship at USC/Norris probably under Dr. Skinner. USC/Norris is a leading bladder cancer center.
As for UC/Davis you only need to look at their team and it consists of mostly prostate cancer specialists . Only one physician is recognised by the Fellow Academy of Surgeons Dr. Christopher Evans
www.ucdmc.ucdavis.edu/urology/ourteam/biodetail.asp?bioid=276
If you want a real second opinon go down the road a bit a couple of hours to UCSF and Dr. Peter Carroll
urology.ucsf.edu/faculty/facCarroll_bio.html
Its just a second opinion. And like i said you can do the mail thing to Hopkins.
I'm sure Dr. Naftulin knows his stuff but if it should come down the line to something more invasive you want a primary uro/oncologist at a major center...cancer or university ..that deals with bladder cancer every day.
pat
P.S. Dr. White is known primarily for prostate cancer anyway so i'd cross him off the list anyway!!

Elle,

Good for you! You make a great point. Does he need another buddy or the top doctor he can get to determine treatment. I'm sure he can find more buddies at something like "who wants to play poker dot com".

It's great if you can get a top doc that is also tops in bedside manner but if you have trade something off, I'd pick the top doc part myself.

Mike

Hi Pat,

We are located in Sacramento, CA. Husband's urologist is Dr. Brian Naftulin, who also did his prostate cancer surgery. If anyone is curious to know more, you can look him up. You probably can tell more than I can from an online bio.

I need to ask Dr. Naftulin about what's being done with the pathology; my husband seems to have been relatively trusting that he's doing what he should, but it's time for me to start asking my own questions.

I work with people who are associated with the UC Davis Cancer Center, so that's likely where we'll end up for a second opinion. My husband has seen Dr. de Vere White there (before we were married), but he did not like him much. I need to impress upon him that just because you don't like someone does not mean they do not know their stuff, and see if we can get him back for another discussion, as they should be on top of all the research, if anyone is.