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I need your help guys

7 years 8 months ago #37049 by Bill Jr
I know what you are going thru! Almost 1-yr later, I still have prostate pain from a "possible BCG infection". Was on Antibiotics for 6-mo, & Uro would never admit to a BCG infection!

The Disease Specialist here in town called my Uro, as soon as I told him why I was there. Everything was "brushed-off", as the Medical Politics here is like the Mafia. One covers for the other!

IF still suffering from a BCG-infection, then avoid additional BCG like the plague!

I will NEVER have BCG again!

May you heal fully & fast!

62
Turbt (May 09)
T1 High grade
Began BCG June 09 (every 3-mo for next 2-yrs)

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7 years 8 months ago #36935 by DougG
Good job, Suzi! Glad you are going to see the infectious disease doctor.

Anita
Forum Moderator
Caregiver

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7 years 8 months ago #36934 by suzi
Dear Pat,
I booked appointment with Dr Mark on the coming Wednesday, first available. I'll keep you update and I hope I am not too late to see specialist.
Thanks a lot

Be strong and don't give up.
a warrior

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7 years 8 months ago #36933 by suzi
Dear Pat,
I booked appointment with Dr Mark on the coming Wednesday, first available. I'll keep you update and I hope I am not too late to see specialist.
Thanks a lot

Be strong and don't give up.
a warrior

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7 years 8 months ago #36932 by suzi
Thanks Jak for your response , you know it helps me a lot when somebody went through what I have right now tells me his or her story at least I feel I am not lonely and there is hope to get over this .Glad to here you that you cancer free since 2007.

Be strong and don't give up.
a warrior

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7 years 8 months ago #36921 by Moonerj
Hi Suzi

Sorry you are going through this. You have been given great advice by the members here.
I had several bladder infections during my BCG treatments.
Following my 30th and final treatment I had a major one, which I believe was actually caused on my 29th treatment. Cipro did not work this time as it had in the past. My Uro sent me to an infection specialist. My left eye was nearly closed, my gums heard, and joints were extremely sore. I can not remember the antibiotic I was given by the infection specialist. In about 4 weeks I was back to normal. During this time I saw the specialist twice a week. He was not sure what had caused the problem. He said I was fortunate that my Uro acted so quickly in getting me to the specialist.
After getting a report from the specialist, I contacted my Uro, my 2nd opinion Uro, and Dr. Lamm. All three agreed that I was not to have any further BCG treatments.
I continued to have a few infections during the following 9 months and continued to see the infection specialist. He found I was not fully emptying my bladder, which he thought maybe was caused by so many BCG treatments. He started me on cranberry supplements, 500 mg and also drinking 1/2 glass of 100% cranberry juice 2 times per day. I have not had a bladder infection since, and my latest pressure test done by the infection specialist indicated that I am now emptying my bladder, which he believes is because of no further BCG treatments.
Sorry to be so long winded, but I thought I would share my story with you.
All the best,
Jack

TA Grade 1
3 Turbts
30 BCG Treatments
Cancer Free since Nov 2007

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