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I might not do it

10 years 6 months ago #17765 by susant
Thank you melodie, you are a very brave woman .

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10 years 6 months ago #17736 by Melodie
Susant,

What you need to keep in mind, is that we are all different and while some will say they have had no problems, some will...and there will be varying degress of discomfort....so much depends on the individual, what their system is like, what kind of medical history they have, thier view point or attitude towards treatment, their doctor, his procedures, etc. Most importantly, you should do something because cancer does not tend to back off and leave us alone.

My mother-in-law was diagnosed in her early 50's with superficial BC and received something similiar to BCG treatements for the next 25 years...every year she had some type of treatment...some discomfort but it was worth it for her to keep her bladder. Finally, after almost 30 years the doctors had to take her bladder at age 80.

Me, I thought I had superficial BC in early 07 until my TURB when afterwards the doctor told me it was invasive in the muscle tissue. I am a complete whimp and wondered if I could go through with an RC...now my surgery is almost a year behind me and I'm doing extremely well...almost like the old me but better because now I don't have that worry. You are stronger than you know! Best of luck. Melodie

Melodie, Indy Pouch, U.W.Medical Center, Seattle, Dr. Paul H. Lange & Jonathan L. Wright

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10 years 6 months ago #17688 by momof4
Susan,

Like I meantioned in a previous post...in a few months you will be giving advice to some other "Newbie"...about what you have experienced and learned...take it one day at a time...

Karen

Caregiver for my Wonderful Husband Angelo, who has Metastatic Bladder Cancer.

Life isn't about how to survive the storm, but how to dance in the rain.

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10 years 6 months ago #17686 by flamenco
hi Susan,
Am really happy that you are going on with your treatment. Don·t put yourself down so much, you·ve come to the right place to get information and support, and I·m sure once you·ve started with the bcg you·ll start to feel stronger about yourself. Will be thinking of you on Tuesday . Big hug !!!
Flamenco

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10 years 6 months ago #17682 by michstate89
Susant,

Thinking about it is always worse than the whole procedure for me. I have had 3 TURBTs, an additional 3 biopsies, and 6 weeks + 2 maintenance treatments of BCG. So far so good for me, and I would rather do the BCG than the TURBTs or cystos. Don't just think about recurrence, but also consider progression - I think that BCG has a good track record. I do not claim to be a doctor, however, so please consider your doctor's advice when making a decision of this magnitude.

Ross

Ross M
TaG1 March 06
Recurrence Jan 07
BCG Maintenance after 6 week treatment

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10 years 6 months ago #17661 by susant
I start on tuesday.I know you are helping me and I should be calmer but i think so many bad thoughts.
I am such a baby compard to all you brave people.
I will try harder .
Thank you for helping me.

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