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Newly diagnosed

2 years 3 months ago #51880 by Jfoutz
BCG is a tuberculosis vaccine that makes your immune system kick it and fight any cancer cells. It's installed in your bladder by a catheter and you hold it for an hour or two. They usually do it once a week for 6 weeks. I just finished my 6th one with hardly any side effects.
Good luck!

Janice

Hematuria 4/2016
TURBT 5/2016
BCGx6 7/2016
Reoccurrence & TURBT 2/2017
BCGx6 4/2017
BCGx3 7/2017
TURBT 10/2017
Gemcitabine X6 12/2017
Cytology negative 4/2018
Cytology negative 8/2018

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2 years 3 months ago #51867 by xox
I heard two options , one day or 5 days. If it's only a day or two, that's not bad. What is the BCG?

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2 years 3 months ago #51865 by Jack R
XOX,

Always hard to have a precise reply, but it seems that you MAY have described the least desirable after procedure plan.

Every TURBT (Trans Urethral Resection of Bladder Tumor)which sounds like what is planned has the possibility of bleeding afterwards. If there is bleeding, or if the doc thinks there might be, in my case, I go home with a catheter, and I schedule an appointment the next day. If clear of blood, out with the catheter. If I'm still bleeding it stays in for another day or two or until bleeding is minor. Everyone hates the catheter - only thing worse is no catheter if you do have bleeding and clotting.

Be sure to ask that you be sent home with a bed bag - bigger bag, with a long tube that sits by the side of the bed - much more comfortable overnight.

Best
Jack

What's with this Bleeding ? 6/2015
DX: HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
T0 CIS comes back.
BC clear as of 5/17 !
RCC found in my one (only) kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo , round 3
Begin year 4 with cis T0

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2 years 3 months ago #51863 by xox
I am newly diagnosed also. The cystoscope showed a small tumor , earlier ct scan indicated benign cyst or tumor. My urologist is scheduling a biopsy and I am told they usually remove any abnormal growth on the bladder wall after doing biopsy. I saw the video but couldn't see anything. I am most concerned about the catheter and urine bag that I am told I need to wear for a week until bladder heals. How was this procedure for you?

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2 years 4 months ago #51709 by GKLINE
Jeez !!1
All this fussin and mental anguish over a little tiny little thing.

YES! of course you are allowed to Fear the Worst. It is normal.
What is also normal is to get your wife out of the bathroom and have a good cry together.
You are a team! Together. The patient is not so special that he gets special treatment and the caregiver cries in the bathroom. You guys are the TEAM. You cant beat this alone and it is a mutual support system.

Oh! And I noticed the change from October to August happened in only one hour!
Sometimes things work out.

And, By the way! I think you will have a VERY Good chance of being a cancer Survivor for a VERY Long time!!!!

We are counting on you.

George

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]
The following user(s) said Thank You: Jopo, mbmccauley

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2 years 4 months ago - 2 years 4 months ago #51703 by Alan
Hang in there. Your TURB isn't far off. FWIW I had "phantom/or real" aches and pains for a few days prior and several months after my TURB also. I am certain they were simply normal stiff muscles and tight joints-normal aging but, going through BC made me super aware to these things. One observation that is good for you. 2 CM is actually considered on the small side with 3CM being larger in tumor grades.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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