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7 years 7 months ago #41265 by upnorth
I hope it all works out, and you can keep the bladder. I never heard of a partial but it sounds like an option I would rather have if possible.

That being said, if there is any chance that there is any more cancer in there I would want them to completely remove it just to be safe.

Keep researching your options and let us know how it all goes.

Man. :unsure: Its never simple is it? :dry:

Mark

Age 55
Diagnosed BC 12/20/2011 Ta No Mo 0a Non-Invasive At age 48
"Please don't cry because it is over..... Smile because it happened!" {Dr. Seuss} :)

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7 years 7 months ago #41263 by CatherineH
Hey Ben... just read your update. I had a partial cystectomy two years ago to remove a solitary tumor at the dome. There aren't many people here who have had that surgery. As he said, candidate identification is very selective so he must be very confident in your diagnosis. Except for my scar, I can't really tell any difference from before the PC.

I had surgery on Thursday and was discharged on Sunday. I could probably have gone home on Saturday but since I live 300 miles from the hospital, another day just made sure all was well for the trip home.

Please ask anything that comes to mind. I will be happy to answer if I can.

Best wishes... Catherine
Forum Moderator Team

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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7 years 7 months ago #41248 by Herb
Another welcome to you Ben and also your wife Pam from this 73 year 'bagman'. Sorry you had to join our family but I am glad you did for these folks really have helped me through and helped me find answers and they quickly became folks I trusted because 'they had been there and done that.'Take Care and I will be with you all in 'spirit' as you journey forward --- Herb

Age 72 had radical 9/11/10 have conduit everything is fine, grateful to be a cancer survivor. Lost Dad and Brother to Cancer both in their 50's.

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7 years 7 months ago #41247 by MyChoice
Ok I just got back from meeting with Dr Bullock. He put a new twist on all this. He says because of where the tumor is located (in the top) I would be a good candidate for a PC. He recommends seeing the chemo doctors next week. Do another scope and take 3 biopsies to make sure the lower 2/3rds of the bladder is tumor free and when the chemo treats are done go in and take off the top third of the bladder. Two+ hour operation and 2 days in the hospital. If he gets in there and see's anything he doesn't like I could still end up with the RAC and neobladder.

Post surgery - scope every 3 months for 2 years and then on a 6 month schedule.

If a tumor comes back then RC with neobladder.

So all that got me in a spin and now I need to make a list of new questions but its worth a shot. He said very few people have tumors in that area so PC normally isnt an option.

Here I go on another weekend of research! Cheers

PC 7/2/12
T3a/N2/M0

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7 years 7 months ago #41221 by GKLINE
Ben
It is my understanding that the chemo decision is made after the lymph nodes are examined by pathology. If they show anything then it is chemo for sure.
I didn't have chemo and just celebrated 3 years of freedom. But If the Dr. was to reccommend it.... I'd do it.

George

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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7 years 7 months ago - 7 years 7 months ago #41218 by mmc
Here is my understanding but please understand I am not a doctor.

Chemo before is typical if there is something to be seen. Chemo after depends on how deep into the muscle the tumor is when they remove the bladder and do all the pathology on it.

I did not get chemo. The chemo is to kill any potential micro mets (metastasis that cannot been seen on any scans/tests). If there is any lymph node involvement, then chemo is for sure.

In my case, there was no lymph node involvement and he took out something like 41 (I'm pretty sure that was the number) lymph nodes. I was just tested a few months ago and I'm still cancer free and the probability is very high that there was no mets and there won't be after this amount of time.

If they suggest chemo prior to surgery, I guess I (if I were you) would want to hear all of their reasoning behind that and make the decision myself.

My T2 was just barely into muscle. If it was getting close to being T3, it may have been a different story because the chance of micro mets would be much higher.

Your doc is going to have lots more info on this than I am so my suggestion is, armed with the info I just gave you, have that discussion with your doctor (in detail) when you talk to him about the path forward for you.

Hope that helps!
Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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