Thanks, Rosie, for the clarification. My parents were still living in California when my father had his first TURB in November of 2004. At that time, his urologist didn't even tell him it was bladder cancer! As far as I know, he did not have any instillation of Mitomycin C after surgery, but I'll have to check his records to know for certain. Toward the beginning of February 2005, he started on the 6-weeks of BCG. I didn't notice any side effects because I was only out there visiting them for a few weeks. I came home before the six weeks were over.
In May of that year, my Mom and Dad sold their house and moved here to be closer to me, as I am a stay-at-home mom and the youngest in the family. (My other siblings all lead much busier lives than I.) They both came weakened and sickly! They had pneumonia! Both my mother and father were so thin! My husband couldn't believe the difference in them. I know moving is difficult for anyone at any age, but I just attributed all of the illness to the stress of that. I never thought much about the BCG treatments at all ... but now I'm beginning to wonder.
At any rate, his California urologist told him to be sure to see a urologist here after "he was settled." Well, time for settling can vary with people and, for 80-somethings, believe me, it takes awhile. Because his doctor never told him of the urgency, he didn't seek a urologist until Thanksgiving, when that night he noticed blood in his urine.
Our doctor recommended his current urologist, who performed his first TURB here in December of 2005. While it was still good news that none of the tumors had invaded the bladder wall, there were many and he had to stay in the hospital for almost a week ... then came home with a catheter for about two weeks. It was pretty tough. This was a pretty tough time all around, as I had requested his files from his California urologist and, while copying them, I saw the diagnosis: Superficial Bladder Cancer ... this was the first we had ever seen (and hadn't heard) those words!!! We were in shock! We couldn't believe the California urologist hadn't said anything ... and also that he had not stressed how important it was to go in for regularly scheduled cystoscopies! We felt helpless that we hadn't known the truth.
Well, after that surgery, my Dad started on a regime of going for cystoscopies every three months. He had another TURB in July of 2006 ... then one in January of 2007 and now again just two weeks ago. Each time, he has remained clear of tumors at his 3 month cystoscopy, but more have grown by the sixth month.
Reading your experiences to my Dad has really helped him step out of the denial of the whole "c" word. He has been living as if he has had a dark cloud over his head for the past two years.
Somehow, this last surgery went so well. He recovered very fast and is the most cheerful I have seen him in ages. He is still very weak and tired, though ... which made me start to wonder about how good the BCG would be for him (especially as it is a three-year plan). I have tried to read a lot about the treatments so I could present him with as much information as possible. Also, since he had the worst tumors after BCG (even though it had been too long a time between cystoscopies), I did start to wonder about how effective it really would be ... then when I discovered the articles on age affecting the usefulness of BCG, I really started to have my doubts.
Anyway, I apologize for rambling on so! I don't have his files with me, although I did make a copy of them for him and they are in his filing cabinet ... so I can't tell you exactly what the stages and grades of the tumors are/were.
Would the use of Mitomycin C have just as much a chance at working even after all these TURBs? Or is it only effective after the first one?
Thank you, again, for all your knowledge and advice!
Kind regards,
Nean