Oh, Nean.....I just want to give you a big hug! You are doing SO much for your dad, and when he has time to step back and look, I'm sure he knows that and appreciates everything.
A couple of things....have your father and mother been checked out for MRSA's? My 80+ father kept getting what the docs said was pneumonia, and kept getting treated, and kept getting it again. Finally, someone checked him for a MRSA, and, sure enough, that was the problem. He had been going downhill for sometime, with all this. Once the MRSA was treated (and that took a long time), he got much better. Here are a couple of links for that:
www.webmd.com/skin-problems-and-treatments/understanding-MRSA-methicillin-resistant-staphylococcus-aureus
www.nlm.nih.gov/medlineplus/ency/article/007261.htm
en.wikipedia.org/wiki/MRSA
Next thing: everytime my folks move from Kansas to Arizona, they seem to get worse for a while. Now they are better. Travel is hard on them. At one time, after their move back to Kansas, Mom was bedridden, incontinent, and needing 24 hour care. Now, she's walking, playing bridge, doing physical therapy, and "with it" again.
Next: My dad has a lot of problems with anxiety and depression. We have struggled to get him on a medication that works. My sister just got her Nurse Practitioner degree with a major in psychiatric meds, so she has been working on this. When he's on a med that works, he is much better.
Try to remember that not all of your dad's problems are related to the cancer. He may need some other treatments, too. Can you find a good geriatric psychiatrist for him? And get the MRSA checked out? Just what you need, right? Another docs appointment.
I don't remember seeing a note about where you are, but do you have options for different urologists? Maybe you could call the NCI cancer hospital closest to you, and get a list of their referring urologists.
I hope I have not inundated you with too much to think about. The people on this site are angels, and I have learned so much from them. Everything I list here is just from my experience, but I do hope that we "sandwich" kids can help each other.
Stephany in Iowa