Bills
I offer the following Question to, and Answer from Dr Donald Lamm, dated 3/8/2010
askdrlamm.bcgoncology.com/category/bcgsideeffects/
"
When does quality of life require stopping BCG maintenance?
Monday, March 8th,2010
Dr. Lamm,I am a 65 year old woman who was diagnosed with bladdercancer last March. I am happy to report that all tests done in January showed
no new cancer cells! I am currently having my second set of maintenance
treatments. I am not sure if I am receiving the full strength now.
I have been thinking that I should ask for a reduced strength from now
on. I cannot tolerate more than 10 minutes on each side now. Is 40
minutes effective? At what point does quality of life become a
factor in continuing treatments or not? My doctor said he likes to get in
at least 12 treatments, but he said any time I want to call it quits I could.Also, as you can well imagine, I am urinating frequently, upevery two hours at night when I’m in between the maintenance series. Last
night I was up every hour (my last treatment was Thursday). Because my
bladder has shrunk so much, I really have to plan my trips
carefully and limit fluids before I leave home. How do you respond to these
concerns?Thank you very much for the opportunity to ask you thesequestions.Dear Friend,It is good to hearthat you are cancer free, and in my opinion YES, YOU NEED TO CUT BACK ON
BCG! There seems to be no end to the misconception that more is better
with BCG. There is no need to suffer. From your symptoms, it sounds
like you need to hold off on BCG and when you start back, reduce the dose to
1/10th or less. We are indebted to the Scandinavians who demonstrated
that by holding BCG for only half an hour, the benefit of reduced dose can be
obtained without having to do the math of dilution.Thanks for asking,Don Lamm, MD"
Additionally, The following long, older, compiled notes from Dr. Michael ODonnell, do in part of the material, address some of the questions and concerns your raise.
thomaschallenger.com/wp-content/uploads/2011/10/Mike-ODonnell-Protocol-long.pdf
D
octors Lamm and ODonnell are both recognized authorities about bladder cancer. I have found their comments, and insights to be helpful during my BC journey. Perhaps their comments will sound familiar and provide material to discuss with your father's doctors and care team.
Best
Jack