For Bills,
Also, a big thanks to Joea73, Jack and Sara Anne for your research and talent in communicating in a way non-scientists can understand. Had I discovered this site before my BCG I probably would
have done the SWOG protocol that Sara Anne finished. I do believe it is
probably the best course offered even when so many are not able to
complete it. From what I have read very few make it to the 5 and final
year. Others, with their medical team (mostly Europe from what I remember) did
once a month for 12 months if my memory serves me back in older threads.
I do believe an initial 6 is very important.
My URO who did study under Dr. Lamm 40+ years ago when they were in San Antonio gave me
the 6 on, 6 off, and 6 more to completion, gave me his reasoning on my
case. First, the tumor was small and probably hadn't been there very
long. His TURB and second TURB, being high grade revealed only a
papillary growth which is better than with CIS. Basically, he got it
all. Second, every invasive procedure involves some risk from the
cystoscopy, TURB, and BCG. His theory is that my 12 should end any
issues. In retrospect, Sara Anne's regimen I might have asked to do
more. However, the second 6 had more intense side effects from urgency,
burning and fatigue. By numbers 10, 11, and 12 I could not retain the
BCG for more than 25-30 minutes which also might have told me more
treatments would be a waste. So, who knows?
I am also fortunate at almost 13.5 years free of this. Bills, all I am saying is I believe
in BCG as a very good treatment and it is better than not doing it.
Do what you do and tolerate with your Dad. Then, go on with your life. No one is guaranteed tomorrow.