Starting BCG next week

Thanks Tate for your take on this. I'm scheduled for the next six Tuesday mornings with times varying between 8:30 am and 10:00 am. I spoke to the nurse who said she does the same thing as for the cystos: numbing gel on the tip then a little more inserted inside.

I'll let everyone knows how it goes. This group has been a terrific source of info as to the range of experiences people have had with BCG.

And we are heading for the RI shore to visit friends tomorrow; back late Monday so less time to sit at home and think.

David

Hi David.

Just follow the 6 hours after BCG. I also have not heard anything about "the week"

I have finished my 6 treatments and waiting for the 31st for my 1st "peek and Poke" since dx, surgery, MMC, and BCG x 6.

for me -I was just tired the following day...my BCG's were always thursdays 4:30. so I just asked off for the Fridays just in case. the last two caused the only pain I had- I couldn't leave b-room for 2-3 hours that night and it was very painful for me even w/ peridium and spasm Rx. Everybody is different though- a lot of people do not have any problems.

I will tell you that my nurse said that alot of nurses do not use numbing meds when giving the BCG...she always did and I think that helped to ..so ask if they will.

Go have fun at the beach- don't dwell on the treatment (It sounds like you are cool with it) I wasted time dwelling and freaking out about the "unknown/new" treatment that I was facing and it was totally Ok once I got through the the 1st one.

Good luck and keep us updated.

-Tate

Gee i've never heard of the BCG staying in the system a week....drink plenty of fluids after instillation.
>Is it safe for me to be around my family after TICE® BCG treatment?
With proper and simple precautions, the bacteria are not likely to be passed along to other people. After treatment, there are some safety steps you must follow.

To get the medicine out of your bladder and avoid splashing, sit down on the toilet to pass your urine. Touching the medicine outside the bladder may be unsafe for you and others.

After you urinate, add two cups of chlorine bleach to the toilet, close the lid, and wait 15 minutes before flushing.

Wash your genital area and your hands carefully with soap each time you urinate.

For at least six hours after the TICE® BCG treatment, drink plenty of fluids to wash out your bladder.
For the six hours after each treatment, follow all the steps given above each time you urinate.

David,

The protocol is to bleach the toilet after urination for 6 hours post treatment.
The bleach needs to be unflushed for like 20 minutes each time. If you have a dedicated bathroom, I think you will feel more comfortable about not affecting others, however, I have never had a problem nor have I ever heard of anyone having a problem as long as you follow protocol.

Good luck. I think you will probably find the first treatment a piece of cake. At least I found it to be so....

Let us know how you do...

Rosemary