Jean....... What the Heck! Five years is supposed to be the BIG celebratory anniversary! I am indeed sorry to hear about this. I know you are the type to "push on through" this next bump, but It
is a shock to you.
This brings up a fear I have had since I was first on this site; I remember asking if this cancer can come back after neo surgery......... Mike replied that I would probably die of something other than bladder cancer. Like a car wreck or cliff diving or some other form of cancer. I still wake up at night wondering if there is still a cancer cell lurking around looking for a place to land. Sorry for the rambling, but you brought it out again.
I am indeed sorry for your 5 year gift. Give em hell! And keep us informed as to the steps to your cure..... Again.
Prayers for you
Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.
08/08/08...RC neo bladder
New Man! [/size]
HI Jean - Sorry to hear you're joining the chemo ranks. I'm currently doing the exact same drugs and schedule you'll be doing. I have had great success (4 months in and tumors shrunk by 33%!!!!!). They can do so much now it's amazing. Your knitting will keep you busy, but remember you may get to the point where even that is not something you can do. I have had only the fatigue to deal with and had to have a blood transfusion a week ago Friday because of low counts. The port is wonderful!! Your veins and skin are doing a happy dance. When you get started in chemo they can give you a spray to numb the area for the "poke" or give you a cream to put on a couple of hours before. Spray works but cream works better. I just recently developed the nausea issue, but find that crystalized ginger worked better than any Rx. Good luck with everything. I have a great support system of family and friends and hope you do too. I'll keep you in my prayers and look forward to an all clear from you in 6 months!!
3 years UTIs
Indiana Pouch - July 2010
Pulmonary Met. - May 2011
Chemo started June 2011
Gotta tell you my surgeon Dr. Inderbir Gill is doing some incredible laparoscopic liver surgery with mets. If it were me and i met the criteria i would be on the next plane to USC/Norris. www.usclivercancer.org/surgicalresection.html
He is a master with the scalpel.
Heck i can't even find anyone around this city that knows what to do with a rash i have gotten around my stoma but its a large area and itches like poison ivy. The uro's prescribe lotion that has fragrance in it...i'm allergic to fragrance......next one said not to use if you have a sulfa allergy..yep i've got that....i've put everything but peanut butter on it. I'm going to try oatmeal next! I sure wish i could find answers for my own weird problems!
My oncologist, Dr. Magnifico (his name suits him well because he is magnificent) has chosen genzar and cisplatin. Pretty straight forward 3 week on, 1 week off. Hopefully we will get 6 rounds. I remember my little Claire called cisplatin the devil. He said he has some very effective drugs for nausea and fatigue will be my biggest problem. I have a lot of knitting projects I have bee wanting to do for quite some time and this will be a good opportunity to get to it. I get my port tomorrow so I will be ready for next week.
I hope you are managing well with your one kidney and are feeling well. I enjoyed your wedding video so much. You and Ed have something very special.
I will keep you posted.