News keeps getting worse...

That is very scary, but the kidneys are functioning. That part is good news.

The nephrostomies are not insurmountable news. I have seen correspondence from people living with two of them, over long periods of time. My husband had a nephrostomy for several months, and in the end, the biggest problem was finding a way to hang the bag without losing the leg straps, so he could walk around at work. (He ended up sewing himself a bag he could hang on his belt)

He could not get the nephrostomies reversed for months, because he was on blood thinners, so we just learned to live with the tubes. I learned to bandage them so that he had the least amount of discomfort. If the stitches pull, they can be adjusted.

I hope you get a chance to celebrate your wedding with your entire family. That your father can wish you well will be a great comfort to him.

Stephany in Iowa

So now my father has the Nephrosotmy tubes in his kidneys. They are dong what they are supposed to and kidney function is now at 1.5. The kidney specialist was in to see him this morning and said he will have to have to tubes in for a little while and that he may not regain full kidney function. He said that the cancer is going up the ureters and causing a blockage. My mother asked if the urologist could go back in and do another cytoscopy to get it out and he told her that he didn't think so because the ureters are now distorted. What???
He said that radiation may help. This is all a complete nightmare. I am getting married in less than 3 weeks and all I really want is for him to be able to come. I am trying really hard to stay positive but nothing seems to be going well and the news is never good. It just isn't fair!