checking in

16 years 2 months ago #13862 by Leigh
Replied by Leigh on topic checking in
Hello Susan,

I am so happy to hear the news of the mid-summer wedding for your son and the recent news that you will be a grandma soon....

Susan I would really love to hear more about your first book and future second book.

You certainly are living life to the full and your social events calendar is filling up rapidly.

I am totally inspired by your positivity and your grace in living your life to the full.

Just reading your post put a smile on my face and has certainly given me a boost.

Thank you Susan......

Leigh

Leigh, 39
Dx July 2007
TURBT July 2007
RC/Neobladder ,Studer Pouch, September 2007
Erasmus Centrum Rotterdam
TNM Classification: pT4 N2 Mo
4 cycles aduvant chemo Gemzar & Cisplatinum

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16 years 2 months ago #13787 by mssmr
Replied by mssmr on topic checking in
Hi, Julieann and everybody -- Well, since last I posted to this part of the forum, a lot has happened, actually -- less to do with my treatment (though there is news there, too) than with reasons to live "beyond expectations."

I do have an appointment set up with a metastatic bladder cancer specialist at MD Anderson for March. In the mean time, I'm trying to get caught up with non-cancer medical issues, teeth, blood pressure, etc. I continue to feel well, generally, but it is hard not to panic everytime I have what could be just a little "normal" ailment. For example, I felt "bone tired" yesterday morning and was afraid I'd never have high energy again -- but it came back as soon as I started teaching my
2.5 hour class. Incidentally, I haven't told this semester's students about my cancer yet. Last spring, I told them because I needed to take a leave; last semester, I told them before I took off my wig and went from blond to white overnight. This semester, I'm waiting to see what may emerge. Last night, one student needed to leave during class to meet with family around her grandmother's
bedside -- breast cancer. I have a feeling that the time to tell them (and contribute to awareness and advocacy) is coming.

Other news: I saw my grandbaby's first ultrasound (no he or she evidence yet), my younger son got engaged and is planning a mid-summer wedding and I got a grant from my university to do research for my "next book." The catch, I need to come back in the fall to accept or refund the money. I'd honor that, but having funding to do research and write the book this summer seems lovely. As long as I feel fairly well, I can do parts of that work anywhere. (I'll tell anyone interested about the book.)

Anyway -- I feel well today and I have so much to live for -- And I have aggressive, metastatic bladder cancer that we haven't been able to shrink or stop from spreading. My best to all -- Susan (mssmr)




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16 years 2 months ago #13750 by mssmr
Replied by mssmr on topic checking in
Julieann ( and all) -- A mystery -- the reply I wrote yesterday got lost in cyberspace and didn't get posted. I wonder what happened. I am rushing today and do not have time for a substantial reply, but here's my IOU, Julieann -- Susan

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16 years 2 months ago #13739 by Gene Beane
Replied by Gene Beane on topic checking in
I hope we hear from Aimeth soon. Keep her in your prayers! Ginger

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16 years 2 months ago #13732 by momof4
Replied by momof4 on topic checking in
Clara,

I am so glad you popped it! I have good thoughts about Bob's scan too. I am very happy that you had this past year since diagnosis...I hope we get there too.

Great to hear from you. Call anytime.

Karen

Caregiver for my Wonderful Husband Angelo, who has Metastatic Bladder Cancer.

Life isn't about how to survive the storm, but how to dance in the rain.

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16 years 2 months ago #13728 by Clara
Replied by Clara on topic checking in
I have not checked in for awhile either but decided to see how things were going and hoping to find some good news.
At this point, Bob is not on any treatments, will have a scan on 2/27th, his 72nd birthday. I said that it is going to be a good one since it is on that day.

Of course he feels much better when he is not on anything. Other than popping pain pills, wearing compression socks for swelling in his legs, things are going as well as can be expected.

We have been going to the Y and he does some light weights and I go upstairs and walk which I badly need to do.

A year ago, I did not think he would be here very long but God has been good and we have had another year together, hoping we have many more.

Love and prayers to you all.
Clara

Caretaker of husband, Bob.
Stage IV
Diagnosed Jan, 2007

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