Patti and Mike-
I can definitely empathize with you. Since my RC w/neobladder in February, I've had two bladder neck resections for scar tissue blocking the flow thru my urethra. Both times, the blockage recurred within days of removing the Foley. After the second, my surgeon (a med school professor, also on the staff of a top-rated cancer center) told us he didn't feel that further resections would be beneficial, and that eventually the scar tissue would abrade enough that I would be able to urinate normally. I also am not a candidate for a stent because of lack of clearance. The Dr. said that it had been his experience that people who were quick healers were most apt to form excess scar tissue. We asked about modifying the neobladder to an internal pouch, but he said he would be very reticent to do that, because it would require another major surgery, and I am having no trouble catheterizing.
I have so far managed to avoid any infections (knock on wood). I definitely don't enjoy the procedure, but have gotten used to it. In actuality, having an internal pouch would require catheterizing thru the stoma anyway, so there's not that much difference. Plus, the NB offers the hope of regaining normal function in the future.
Having said all that, I too would like to hear from someone who has had this problem, and has been able to regain normal function.