Would Like Some Suggestions Please

9 years 6 months ago #46307 by wsilberstein
Replied by wsilberstein on topic Would Like Some Suggestions Please
Sorry I didn't answer sooner, but I haven't been here recently.
In the 13 years I have been doing battle with high grade bladder cancer including CIS, I have never had a positive cytology. It's a good test, but one can't be lulled into complacency with a negative test.
With regard to how quickly bladder cancer can develop, my follow up biopsies just a few months after BCG for CIS were positive for high grade papillary carcinoma with invasion of the lamina propria. I wasted no time getting my bladder out before I developed invasive disease.
That being said, there's no indication that you have bladder cancer, but I had problems with kidney stones during all my treatments, so the best thing to do is follow up appropriately with the cystoscopy.
I hope by now you've had it done and it was negative for cancer.

-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant 5/2014
Pediatrician

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9 years 9 months ago #45977 by Hudsongrl
Replied by Hudsongrl on topic Would Like Some Suggestions Please
Thanks for clarifying that diesel. Keep up the fight. This disease seems to be one of patience doesn't it?

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9 years 9 months ago #45976 by dieseldoc
Replied by dieseldoc on topic Would Like Some Suggestions Please
Hudsongrl,The ct scan I had was first time I had tumors about 7 or 8 years ago. I think the ct scanners are much better now. I have had many tumors since then, I have never made it to yearly check ups.

T1,NO,MO battling bladder cancer since 2005

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9 years 9 months ago - 9 years 9 months ago #45974 by Hudsongrl
Replied by Hudsongrl on topic Would Like Some Suggestions Please
Diesel this is interesting that ultrsound picked up the tumors but CT didn't. Are the tumors quite small? Good luck on your surgery.

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9 years 9 months ago - 9 years 9 months ago #45973 by dieseldoc
Replied by dieseldoc on topic Would Like Some Suggestions Please
Al. I had urinalysis done and it came back negative every time, ct scan showed nothing. Cystoscopy showed 5 tumors. And ultrasound showed 5 tumors and a large stone in my left kidney! I currently I have a cluster of 3 tumors, 3 months ago I was checked and I was clean. So it is possible for BC to grow that fast. And the urinalysis sometimes show false negative or false positive results. Alan is right, if everything shows clear for BC then it probably the stone which they can do a lithotripsy on to get rid of it. Or you are just one of those people that has blood in their urine for no reason
I to go in for surgery March 4 to remove these tumors! Good luck on your check up!!!!

T1,NO,MO battling bladder cancer since 2005

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9 years 9 months ago #45972 by Hudsongrl
Replied by Hudsongrl on topic Would Like Some Suggestions Please
Hi there. When you had the CT scan of the kidney, the bladder would also be imaged. The entire abdomen is typically viewed.

Another cystoscopy is prudent, but it would seem unlikely this is bladder cancer with all your negative tests.
My husband had malignant cells in urine and his tumor was visible on both ultrasound and CT.

Best of luck to you.

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