Neobladder Urione Retention

11 years 9 months ago #42518 by Silk
Replied by Silk on topic Neobladder Urione Retention
Thank you Mike for answering, I have been a member of this site for a long time, it is so helpfull and was recommended to me by my surgeon about 4 years ago.

Thanks for all that you do.
Silk

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11 years 9 months ago #42515 by mmc
Replied by mmc on topic Neobladder Urione Retention
Silk,

Sorry. No ideas about the pressure part of things.

MIke

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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11 years 9 months ago #42514 by Silk
Replied by Silk on topic Neobladder Urione Retention
Hi Mike,

Thank you for your message.

I do not find if an "issue" either to have to cath all the time, after 4 years it does become a part of what you JUST do.

I have a lot of pressure when on my feet or walking, exercising etc. because of a rectocele, not from the neo, but the rectocele causes me to cath more often, about every 2 1/2 hours because of the pressure.

Any suggestions for the pressure?

Thank you all.
Silk

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11 years 9 months ago #42512 by mmc
Replied by mmc on topic Neobladder Urione Retention
It really doesn't hurt at all. I certainly wouldn't recommend it without the surgical lubricating gel or KY jelly though!
Without the prostate any more, it is simple. If I still had my prostate (especially since mine was enlarged and constricting my urethra for years) I would have a very different position on the matter. I hated cystos. Not a comfortable experience at all!!! Now I could probably do my own. :).

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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11 years 9 months ago #42511 by FarRed
Replied by FarRed on topic Neobladder Urione Retention
Mike is just a masochist :laugh:

Age: 50
Bladder cancer diagnosed Mar, 2010.
Robotic assisted laproscopic cystoprostatectomy with Studer neo-bladder, 2010.
UMC Tucson

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11 years 9 months ago #42510 by mmc
Replied by mmc on topic Neobladder Urione Retention
I have to cath every time I go. Doesn't bother me a bit. I try to be discreet about washing my catheter in public restrooms so it doesn't embarrass other people but that's about it. Was kind of funny when my three year old granddaughter came out of the bathroom swinging the red rubber catheter around one day! :D (I don't keep it in there to dry out anymore).

Would I be happier if I didn't have to cath? Sure, who wouldn't. Is it a big deal? Nope. :)

I don't think they just go in and do the belly button surgery if you have problems that cause you to need to cath. I would guess it would likely be considered "elective" surgery by an insurance company but I don't know that for sure.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

Please Log in or Create an account to join the conversation.

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