Scared

The doctor seems qualified from what I know and I have done a lot of research on the internet. Seems this is his speciality. We are at the Michigan Institute of Urology, Macomb Michigan area. I did a bunch of reading on this neo bladder last night and also read some threads in this forum and other forums and I guess I am confused as to why I am reading about people saying they have leakage when they stand... , and people getting UTI's and kidney problems, having to self cath.Seems as though those were things the doctor should have mentioned. We were told at yesterdays appointment that a girl from his office would be contacting us so we can meet with her, so perhaps she will be the one to give us more details about what will/can happen. It's just so hard to put yourself into someone else's hands and know he is the best one for the job. He suggested we meet with a stoma nurse also so that we might have better knowledge of each procedure and what is involved and I thought he was going to give us a name of one prior to leaving the office yesterday but he didn't. I didn't read a whole heck of a lot of good outcomes in these forums. It seems people can't even leave the house, they wet at night... is this really how it will be or does this NOT happen with everyone? Thank you so much for responding.

It is a big deal, and a second opinion would be comforting. Did you check this site to see if there are any "specialists" near your location? Others may jump in with recommendations if you provide where you are. Do you feel the doctor is experienced for the procedure? Keep talking, and asking questions.

Hello,
My husband has stage 2 BC. He has completed chemo (didn't lose his hair) and he did fairly well with it. He is 68 yrs old. We just left the surgeons office regarding the upcoming surgery to remove his bladder, prostrate, some lymph nodes. The doctor has discussed the neo bladder procedure with us. We met with this surgeon one time prior to his chemo treatments and this was the last time we will see him prior to his surgery on July 14th. Without saying,,, we are both very nervous. The doctor explained the procedure / incisions / recovery time / etc. I was the one that brought up other possible procedures so that my husband could understand there are other ways they can do this. He would prefer to not know anything and I'm the complete opposite. The doctor would not have brought this up had I not asked, which makes me a bit nervous. Wouldn't a good doctor discuss all the options rather than just one? I'm not sure I feel we are in the best of hands even though he is highly recommended by my husbands general practitioner. I feel like we should know more...He never once mentioned anything about him possibly having to cath himself. Isn't that something a doc should mention? Although he mentioned this is going to be a rough road for a bit I feel like we needed more info. This may not be of any importance but in the middle of our appointment, the doctors cell phone rang (was on vibrate) but it did so for sometime. Then in the middle of our discussion he took it out and looked at it. I feel that was un called for. Is anyone out there that can say they felt completely in good hands prior to having this surgery done? I don't want to encourage we spend time looking elsewhere but it just seems we should know more before this all happens. I've learned more online than I have from his doctor. I hate this feeling and don't want to express that I feel we might not be in the best hands so he worries more but darn it... this is a big deal. The worst part is he feels great right now. The chemo has ended and he is finally feeling like himself again. I know he has to have the bladder removed but how do we know that the neo bladder is the best way to go? And then if they find out this cancer has invaded the lymph nodes.. was this all done for nothing? We are very scared. Would love to hear some success stories!