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3 months in with neo bladder and still leaing

10 years 4 weeks ago #32545 by dukel
Rick;
It's good to hear from you. Sorry you're still having problems.
Hope things improve for you soon.
Wishing you the best.
Duke

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10 years 4 weeks ago #32544 by Hox
don't know about the worst surgeon... had two different ones so hard to tell...maybe just the worst luck... the one I chose and who is looking after me calls me on Saturdays etc to keep in touch... the leak is maybe pin prick sized and loosing less than a 1/4 ounce in 24 hours... sure don't want to be opened up for that... so no point changing docs at this time.... just wondered if anyone else had been in this situation... have to leave the JP in until the lab tests show zero urine.... frustrating but "in for a penny...." Hox

Rick

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10 years 4 weeks ago #32543 by Patricia
Hox..you still have the J tube in you? They need to find that leak and repair it if it has not healed on its own by now......or maybe another surgeon??
Pat

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10 years 4 weeks ago #32542 by mmc
Sounds like you may have found the worst urologist/surgeon in the country Rick. I suggest you contact Jack (Moonerj) about getting someplace that knows what they are doing. He knows the top docs in Canada.

Your case has been one terrible thing after another.

I hope you are able to get this all fixed soon!!!

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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10 years 4 weeks ago #32539 by Hox
My neobladder is still leaking small amounts in to my abdomen and then in to my JP drain... back on the catheter.... any body else have this issue? Thx Hox

Rick

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