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3 months in with neo bladder and still leaing

10 years 2 weeks ago #32575 by LeeH
I seem to remember that stuff used to block up the radiator pretty good too.

I still think 3 months and leaking is pretty far out of line and would want another dr involved.

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10 years 2 weeks ago #32574 by Humpy
Rick, when I wuz a teenager, and worked at a gas staion, we used BarsLeak on leaky radiators. I wonder if something like that would work? Sorry, just trying to get a chuckle out of a not so funny situation.

I am looking forward to the day when all this is behind you.

Jim

Age 54
T1NOMX,Grade 3 Urothelial CIS (Carcinoma in Situ)
Neobladder 5/19/2009
Prostate Capsule Sparing
U of M Hospital, Ann Arbor, Michigan

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10 years 2 weeks ago #32567 by Patricia
Your doc was right KC......Percutaneous nephrostomy, or nephropyelostomy...
pat

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10 years 2 weeks ago #32559 by kcnorthstar
I had a pretty bad leak after my neo operation, but it resolved itself after about 10 days. I was told at the time that it would heal and close off by itself, but if it didn't that one of the options was to put tubes into my kidneys to drain the urine and let the neobladder heal without urine in it.

KC

Age 59
DX Jan 2006 - T1B G3
RC - Neobladder June 2006

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10 years 2 weeks ago #32557 by LeeH
Rick, what are your Dr's telling you about the leak. Are they giving it more time to close up and if so, how much? What are the plans if it doesn't close up? They wouldn't take out my catheter until it was tested leak free. Those are the first questions I'd be asking and I'd sure want answers now. If I didn't get them, my wife would and if she didn't get them we'd send in my sister-in-law (in our family - thats the nuclear option!)

Mike, you sure seem to like those epidurals now (I'm a big believer in those too)


Lee

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10 years 2 weeks ago #32551 by mmc
Well even I can dial a phone on the weekend but I can't do surgery so I'm not sure that calling on the weekend has much to do with his skill as a surgeon. Still, I guess it is what it is.
If you do require a repair at some point, I would suggest that you consider finding the top surgeon you can find. If it's just fixing a leak (it could probably be done by a general surgeon.

I've not heard anyone else having a JP drain in three months after surgery but it certainly doesn't mean that it has never happened before. Just hasn't happened to people who come to this site over the past four years that I've been around.

Also, if you do get it fixed, it would seem like you could have something like that done laparoscopically (sometimes called keyhole surgery). Tiny incisions make for faster recovery. They can even do it with an epidural.

Sure hope it gets resolved soon!
Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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