Lee,
Thanks for the good wishes.
With regard to the chest xray, I think the CT you are getting is probably better. My guess is my doc just went with the xray with a plan to do CT if there was any concern from the xray results. Xray is WAY cheaper than CT.
My opinion is that cytologies should be done as a routine part of follow ups. Cytology is a urine test specifically looking for abnormal cells. It's expensive but sometimes the first thing that shows anything.
I had an all-clear on all of my tests and cysto back August, but when I had some blood in the urine a couple weeks later, the cytology is what discovered the cancer return. The scans didn't show anything and a followup TURB in September, after the cyctology discovered cells, showed muscle invasive.
I think cytology tests are expensive so NM22 or something like that is usually done. I was having those quarterly after my initial TURB and BCG starting in 2006.
Given my personal experience, I would suggest that people request regular cytologies.
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...