The struggle has been in vain- it's spread- update on Bob

I am very very sorry to hear this. My thoughts and prayers will be with you both. Miracles can happen.

Lorrie,

I am so angry along with you. Following this surgery and you and your daughters plight of getting him the best care and the misfortune of having been thrown under a bus sort a speak at times with all the er trips and lenghty stays is overwhelming. And now more bad news that was at first a good sign of no more cancer. I can't even think its so upsetting. If there was ever a case for mal practice this would be one. Maybe I am wrong but it seems nothing has gone right from day one with your husband. I suggest new doctors as well, second opinion and go from there. Your family has been thru so much, maybe a new look at things and a new specialist is in the making for you. I thought something was up as I sent you a personal message during the holidays with no response. So I thought Hummmmm. And now I know why.. Lorrie get him to a new specialist, I am sure he is sick of all of it but it has to be done, my prayers are with you and yours,, Ginger Beane

Just a little further note on Bob. After the surgery, the path report said that the cancer was only in the bladder, not in the muscle & that all lymph ndes were clear. they said that there was no need for Chemo as they got it all.

Actually Don, what we were told was that when the catheter came out, he would start training the new bladder with Kegal exercises. He should start setting the alarm every hour & that he would be recovered & dry during the day in about 2 months. They said he would likely need a pad overnight. Well that hasn't happened. His surgery was Oct.2/07.The continence nurse thinks he is having the problem because of when the catheter fell out & everyone was trying to force it back in. she thinks they did damage then & that there is probably scar tissue now etc. But now with this devastating news, there really isn't any point in his trying to get the damn thing to work anymore. Sorry- I'm angry & upset. I don't think they did their jobs in the 1st place. I'm sure if they had looked a little closer they would have found more cancer. Bob's Dad died of lung cancer & 1 brother has had a lung operation. Bob was a smoker who didn't want to quit. The lung cancer does not surprise me, the bladder cancer did. I am dreading watching him suffer- I know I won't be able to handle it, I want to run away now. Thanks for your help- Lorrie

Lori sorry for what you are going thru with your husband. But none of us with RC have the feeling in our new pluming. your Dr should have told you that is what it would be. Try as best you can to be positive and pray for things to not be as bad as they may seem. Good luck. Don

HI All, we are all obviously quite upset about this news...its yet another blow, just when we thought dad was finally doing better.

Histology said it was a poorly differentiated carcinoma, consistent with transitional cell carcinoma.

I wasn't at the most recent appointment, but plan on being at the oncology appt. As far as I know, dad will be referred to a local cancer centre, which is well regarded. Hopefully the communication will improve!! From what I understand, they practice a "team approach" which will be refreshing. We will I'm sure get our second opinion once we have this appt.

The respiratory specialist didn't think surgery would be offered due to the fact that it is in both lungs...might not leave him with enough functional lung. He has referred dad for more scans (CT and Bone) to see if there are any other spots.

Anyway, the news is bad, and I really hope they don't find it elsewhere...I guess we better start looking at the metastatic BC section of this website. andrea