Cure Magazine Article

12 years 1 month ago #41500 by upnorth
Replied by upnorth on topic Cure Magazine Article
Ray;

Great artical.

I really like the fact that they will be able to tell if a person will benefit from Chemo instead of just putting them in the microwave to see what happens.

Thanks for the heads up. Let us know if there are anymore stories like that.

Mark

Age 55
Diagnosed BC 12/20/2011 Ta No Mo 0a Non-Invasive At age 48
"Please don't cry because it is over..... Smile because it happened!" {Dr. Seuss} :)

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12 years 1 month ago #41499 by mmc
Replied by mmc on topic Cure Magazine Article
JD,

Keep in mind that you don't even know if you have cancer yet.

Looking at Cancer Centers of America is like looking at Bob's Screen Door company to build a skyscraper.

Go to an actual recognized cancer hospital (NCI).

Here is a link: bladdercancersupport.org/bladder-cancer-help/resources/finding-a-doctor-and-centers-of-excellence-

Look there and scroll down to Illinois. There a couple of places to check AFTER you are diagnosed.

Regarding the article (I didn't read it). Don't get the idea that Bladder Cancer is no big deal. Every damn cancer is a big deal. Some cancers however, are easier to treat and have better outcomes. Bladder cancer is one of those. If it is bladder cancer, then you need to get it treated. You don't know what that treatment is until you know what it is.

You do realize, that it very well could be nothing and I'm hoping that is what it is.

If you are diagnosed with bladder cancer, then go to a bladder cancer specialist (not a general urologist) to get a 2nd opinion. If it is a "watchful waiting" treatment plan (likely if low grade T0) then you can go to you local urologist for that on a regular basis. If it is BCG (likely if high grade T0) then you can also do that at a local urologist. You just want the 2nd opinion to confirm the treatment plan (and diagnosis by having their pathologists evaluate your slides).

The stress is likely doing more damage to you right now than the tumor/polyp/what-ever-ya-want-to-call it.
A couple of weeks one way or another makes no difference at all in treating this EXCEPT for your anxiety level. Get something for the anxiety so you can relax.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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12 years 1 month ago #41498 by JD37
Replied by JD37 on topic Cure Magazine Article
Thanks. I didn't mean to make it sound that way either...just been trying to deal with this as best I can.

Thanks again for your kind words.

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12 years 1 month ago #41497 by corkyd614
Replied by corkyd614 on topic Cure Magazine Article
Hi JD,

I hope you read the most current article March 2012. Another article was in the magazine but was published in 2006. I do not read any article that is over five years old as progress is being made on a daily basis.

I apologize for not being more specific but you should know I am not a doctor and I thought the information provided in the March 2012 article was beneficial at least to me. I am sorry for the post that set you back a mile. There certainly was no intent on my part. Good luck with your treatment and I wish you and your family the very best.

Regards,

Ray

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12 years 1 month ago #41493 by sara.anne
Replied by sara.anne on topic Cure Magazine Article
Cancer Centers of America is as for profit outfit that specializes in charging a lot of money for not much. This is just my private opinion. I know of no one there with expertise in bladder cancer. Bladder cancer does not present itself in the same ways as many other cancers and is usually treated by urologists who specialize in bladder cancer.

On our home page, at the top, click on HELP. You will see another option call "RESEARCHED RESOURCES" and after you click on that you will see a huge list of places in the US that have special expertise in bladder cancer treatment. I would suggest that AFTER you get your initial diagnosis, IF it is cancer, and you feel that you need to see another specialist, that you consider this. If you let us know where you live, geographically, we can help you find such a place near where you live.

When your urologist calls it a "polyp," it may be that he thinks it is something called "papillary transitional cell carcinoma." This IS a kind of cancer but can be very low risk and treated only by the procedure you will have. It grows sort of like a mushroom coming out from the wall of the bladder. It is the very BEST kind of bladder cancer to have, if you have to have it.

We are here to answer your questions.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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12 years 1 month ago #41492 by CatherineH
Replied by CatherineH on topic Cure Magazine Article
JD... I suggest you start a new thread in "Newly Diagnosed" and ask for recommendations for doctors/hospitals in the Chicago area.

We always strongly encourage second opinions and since you already know there is that small polyp in your bladder, now would be a good time to go ahead and consult with an experienced bladder specialist.

Best wishes... Catherine

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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