HIGH GRADE INVASIVE PAPILLARY UROTHELIAL CARCINOMA WITH MICROPAPILLARY FEATURES

Thanks Sara Anne,
Thanks for the suggestion. I will check and see if Kaiser will allow out of program second opinions.   I actually have a lot of confidence in him. My surgeon said he wanted to wait 8 weeks to allow the bladder to heal from the first TURBT.   He does know how serious my cancer is but suggested taking a conservative approach first since the tumor had not gotten into the muscle.  I realize I am new to all of this but that seemed like an appropriate approach rather than removing the bladder right away.  I'm still trying to wrap my head around the fact I have cancer...I'm not quite ready to make the leap to losing my bladder and other organs just yet.  
-Joyce

Thank you so much for your post.  You have given me more to think about, particularly getting a second opinion.  I am with Kaiser Permanente  in Southern California so if you do have information about leading hospitals in the area, I would appreciate it.  Best wishes, Joyce

Hi everyone. I'm new to this forum.  I had my first TURBT last week and just found out yesterday that I have Stage 1 High Grade Non Muscle Invasive bladder cancer, with micropapillary features.  I am trying to wrap my head around all this, glad it isn't in the muscle but freaked out knowing that this is a less common (some would say rare) and aggressive bladder cancer.  My surgeon recommends that we take a conservative approach since it isn't in the muscle.  So I will have another TURBT in 2 months and then start BCG treatment depending on the results of the TURBT.  Just wondering if anyone else has experience with of this.   I'm a 67 year old women, never smoked and no other health issues, so I have to say this has knocked me for a loop.  My husband and adult children as well as other family  members, are being very supportive.  But as much as I am trying to stay positive and take things one step at a time, I can't help thinking about worst case scenarios.