Newly diagnosed Turbd upcoming

1 month 2 weeks ago - 1 month 2 weeks ago #60815 by Alan
Replied by Alan on topic Newly diagnosed Turbd upcoming
As Sara opined, the .8CM tumor is what is probably the reason your cytology shows some activity. The good news is you are having the 3 items to properly diagnose your situation. Cytology as an indicator is a good choice of words as opposed to a diagnostic tool. It is just a tool. The CT scan examining the torso appears to have ruled out any other and the cystoscope and TURB are the final pieces. All normal steps. The one thing I have learned is patience to get them all done. Also, until the pathology report is done you won’t have a complete picture ie. low grade or high grade. If there is any consolation your profile is very similar. A small papillary tumor that was 13 years ago. You will do fine.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
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1 month 2 weeks ago #60816 by WiscoNewbie
Replied by WiscoNewbie on topic Newly diagnosed Turbd upcoming
Hi All, 
I am headed to the hospital for TURBT. If that goes well and bkadder is intact I will have the chemo infusion. Does that chemo part of it hurt? Will it make me chemo-sick for some time? 

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1 month 2 weeks ago #60817 by sara.anne
Replied by sara.anne on topic Newly diagnosed Turbd upcoming
Wishing for the best result possible for you!!

No, there are no side effects to the mitomycin wash after the TURB.  It is not like chemo that is injected into you.  It is done so that any cancerous cells that are exposed or dislodged by the procedure are dealt with.  Your bladder will be making enough urine to wash this out as well.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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1 month 2 weeks ago #60818 by WiscoNewbie
Replied by WiscoNewbie on topic Newly diagnosed Turbd upcoming
Thank you so much, I am always braver when I know what to expect. This helps. :) I'm ready to DO THIS. 

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1 month 2 weeks ago #60822 by WiscoNewbie
Replied by WiscoNewbie on topic Newly diagnosed Turbd upcoming
TURBD completed yesterday, now to wait for pathology. Had to wear catheter home and will have it for a week. Dr got close to puncturing bladder, but didnt. She doesnt want to risk my bladder pressure bursting it...so catheter it is. Not my fave however cancer is worse so I will take it. 

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1 month 1 week ago #60840 by WiscoNewbie
Replied by WiscoNewbie on topic Newly diagnosed Turbd upcoming
Its a week since my TURBT,
Follow up appointment on Monday. Pathology showed non-invasive, slow growing. Low grade.
I am still feeling some gastro upset, low appetite.  A vague pain in my abdomen on right side. Tumor was removed from left posterior side of bladder.
I am not taking any more opiods since day three after.  
How do you keep your mind from racing at every single pain? I continue to fear spread, that there is missed liver,  bowel, kidney or ovarian involvement. 

CT showed all normal appearing organs.

I know this abdominal pain is real. 

What tests could I ask for to rule out further issues other than a CT?

Is there any other blood test or ultrasound or something that might pick up those things?

Im worried about beimg dismissed...Im not a paranoid person. Thank you in advance!



Thank you in advance.

 

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