Hi all, Im a newly diagnosed Female, 53, Nonsmoker.
Friday night, began bleeding heavily. No pain. Saturday morning, went to ER. At ER, passed large clots. No pain.
CT revealed 0.8cm mass.
No other abnormalities in organs on CT.
Yesterday I was brought in immediately for the Cystoscopy which confirmed a single Papillary tumor on posterior left side bladder. Urologist said that based on her experience, it appears to be surface, non invasive, likely low grade and that she would be extremely surprised if that wasnt the case, although anything can happen.
Guess is Papillary, Low Grade, Non Invasive Transitionial cell. It looks like a little bit of coral or something. Growing up.
She said that I will have the removal and biopsy Thursday, and a chemo wash of bladder for 1 or 2 hours.
IF the pathology is as she suspects, I would be scoped every three months for recurrance.
I have not seen my urine cytology yet. Obviously I am afraid.
1.Has anyone experienced their Dr being completely wrong about their assumptions from scope to TURBD?
2. Also...when is the right time to ask for 2nd opinion if one seems necessary?
3. I worry about possible further organ involvement...should I be asking for more tests?
Thanks in advance!!