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adenocarcinoma 4 cm in bladder

3 months 7 hours ago #59596 by Alan
I forgot to attach a questionaire that can be useful with your Doc. Way too many questions so pick and choose what applies to you.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
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3 months 8 hours ago #59595 by Jack R
Carol ckfun

Moffitt is a great place to have available.

Many if not most of us have some degree of aversion for the path we are on. Learning more about options, effects and changes accompany treatment can help resolve concerns.

Make a list of your husband's concerns and be forthcoming is asking those questions when treatment is suggested.Having great communication between the patient and the care team is really important.

I am happy that the earlier comment were helpful.

Best to you and your husband,
Jack

What's with this Bleeding ? 6/2015
DX: HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back...

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3 months 12 hours ago #59594 by Alan
Caregivers sometimes have a bigger job than the patient. As Sara Anne said, Moffitt has a great reputation. Keep posting as you go someone will listen.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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3 months 13 hours ago #59593 by ckfun
Someone from BCAN had recomended Dr. Scott Gilbert from Moffitt.
Not sure if we get to choose the doc.
Thank you for your replies.
Carol

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3 months 13 hours ago #59591 by sara.anne
Good for you!!! Your husband is fortunate to have you in his corner. At least after your visit to Moffitt you may have a better idea of what the future holds.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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3 months 13 hours ago #59588 by ckfun
Thank you for your replies.
I finally talked my husband into going to Moffitt Cancer Center in Tampa.
I think that is our best shot, since many other states don't want people from Florida.
Also read the PH 2 clinical trial for adenocarcinoma.
Thank you again...

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