Hey, where are all my caregivers!!!!!

Hi all- Thanks for asking Ginger- I haven't had much to add lately. It's 2:45AM here & I can't sleep again, so here I am reading all the posts (this happens a lot- I read but don't post much).We had a meeting with the Oncologist on the 22nd for results & as we suspected, things are not too good. There are more nodules in the lungs & they are growing & now some lymph nodes in the chest are involved as well. Surgery is not an option. She offered Chemo to try and shrink the Cancer. We were there with our kids & even though she told Bob to think about it as there wasn't any real rush, he decided on the spot that he wanted to try it.So, today is the day of the 1st treatment-
6:AM, I didn't finish earlier- I'm feeling very guilty- I have many things going on today that could not be resheduled so Andrea, our daughter is going to take Bob to Kitchener for his treatment- there is a 1hr. class beforehand, then 4 hrs. of Chemo.I feel so bad- I should be there. The plan is for a treatment once a week for 3 weeks then 1 week off. If it works, it will continue for 6 mos., if not then only for 3 mo.Andrea was very brave & asked the Dr. how long she thought Bob would have & while she didn't want to answer, she finally said 6mos. without Chemo & a year with,
So, that's where we are, We are all praying that he can tolerate the Chemo & that it will give him quality time. Please keep him in your thoughts & prayers.
Lorrie

Boy, Julie, all that and bridge too. I am amazed how you two move on daily in spite of the interuptions. Everyone has something to offer here on the forum, I think its great how we can share, it gives all of us a boost!!!!Thnaks for letting us know whats up with you and Dick!! Ginger

Thanks for asking Ginger. We spent 3 hours at the Cancer Center Monday because Dick's H & H was in transfusion territory. I took the results down to Nikki Dr. M's nurse and she came back with orders for the lab to draw the blood for type and crossmatch. Then I had to wait to schedule the appointment for the transfusion. Meanwhile I asked for a complete printout of the labs. I noticed that his platelets were down to 25 and were labeled LL but by then Nikki had left for the day. It was about 5 when we left. *note to self no more 2 pm appointments for blood draws from now on they will be in the morning.
Tuesday morning 8 am we were there for the transfusion and they told us they didn't get enough to finish matching so needed more then Nikki said they also need more blood to see if the platelets were going up or down. I found out if they get down to 20 they will transfuse platelets.
Finally just before 12 they started the transfusion of 2 units of packed cells. The platelets were up to 33 and Dick is to stop the Revlimid temporarily. We got out of there about 4. So another day hanging out at a medical facility.
For fun we walked over to the small club house here and played bridge. Dick said he had a good time even if he was drug befuddled. I said better than pain befuddled but he is having more pain today. I will have to phone the pain clinic tomorrow.
Today I went out with my Red Hatter's group for lunch. They all liked the place which made me glad as I had recommended we eat at Joe's Crab Shack. We dress in purple and wear Red Hats because we have grown old. LOL

Julianne,
What a great day for your mom, I will share this, I took my 16 year old grandson to the skin specialist today, (pimples) I let him drive my car. I didn't scream once, so it was a good day!!! Thanks for checking in anyway!!!Ginger

Hello there! I'm still here. I check in every day, but guess I haven't had anything to add. I just haven't felt much like posting for some reason. There is nothing new here (knock on wood). I have been busy with lots of things. My oldest son (17) went to prom last weekend. Wasn't he just a baby? We got to share this with Mama. She is so proud of him. He is her first grandchild and holds a special place in her heart. My hubbie had knee surgery Friday, so I have been playing nurse. Just a lot going on. I'm thinking of everyone, but just don't know what to add I guess.

I guess I miss hearing from everyone, all of you who have had husbands and wifes who had surgery lately, clock in and let us know how its going. I am thinking of
Lorrie, Pat,Pat, (theres 2 Pats) Peter K, Jeff who had his r/c today, Karen, Heenan, Cathy, Sky pilot,Eileen, Julie,
Margot, Juianne, Melodie, Maria,Holly, Joe, this includes everyone, and maybe what you need help with at present.
I guess I'll start, its been 8 months now, smooth sailing for us so far.
we want to have the summer we didn't have last year because of all the new
issues with b/c. How about you????? Ginger Beane