Lelly, I am sorry you are here but welcome.
I am ten years out of an invasive TCC bladder cancer diagnosis my case is a little different than yours but I do have an Indiana Pouch as a buddy. I had my chemo prior to surgery and also had pelvic radiation as part of a clinical trial trying to preserve my native bladder that failed. In May of 2006 I had my Radical Cystectomy at the University of Chicago Hospital done by Doctor Gary Steinberg.
The basic difference between the Neo and the Indiana as far as construction is the way the urine leaves the body. With the Neo they reattach to the urethra and with the Indiana they make a stoma on the abdomen. I have my stoma in my naval and no one would know it was there if I did not tell them.
I did not have a choice of what diversion to have as the cancer had spread to my urethra so a Neo was out. But having said that I think I would have gone with the Indiana as I already knew woman with both and it seemed to me that the Indiana was less problematic . For some woman the Neo works perfectly after time and training go into it for others they are either hypo continent of incontinent. I have read that up to a third or a quarter of woman have issues with the Neo. I have asked why men have fewer problems with the Neo than woman but have yet to get a firm answer, but one would think it has something to do with the female anatomy. I am not saying the Indiana is perfect, nothing is and both can have issues and take training.
For me the Indiana has worked well I was in my 40s when I had it done and didn’t want to wear an outside appliance, if that is vain so be it. I have hiked, danced, exercised and gone snorkeling with my Indiana. I can honestly say once it was trained and an issue with the stoma being too tight was taken care of the Indiana has not kept me from doing anything I wished. I cath about every 4 hours or so depending on how my tea I have drank, at night I get up once. As a matter of fact while hiking it is really great to be able to write your name in the snow so to speak just like the guys. I collect makeup bags but a baggy will do and I carry with me small packs of lubricant, a mini hand sanitizer and disposable catheters with me when I travel. It has become second nature to preplan what I will need to pack for a trip
.
I hope someone hops in and talks about the Ileal Conduit I can tell you the basics but do not have personal experience with it. I do know one of the pros is that the surgery is usually shorter when it is done. Statistics do show that the higher volume your surgeon does of the diversion you chose the better the outcome.
I hope this helps if you have any questions we here.