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Radical Cystectomy Options?

4 years 4 weeks ago #49409 by LillianG
Plk, I just want to wish you smooth sailing through your surgery on 10/05, followed by a speedy recovery.

Take care and keep us posted,
LilyG

5/2015 4x2cm HG Ta Papillary TCC; 6 initial BCG followed by 3 sets of BCG maintenance. Ten scopes - all NED. Now at scope 1x year.
The following user(s) said Thank You: Plk

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4 years 4 weeks ago - 4 years 4 weeks ago #49402 by Plk
I will be having a radical cystectomy with an Indiana Pouch on October 5. The surgeon , who is very knowledgable in this surgical process says that even though my chemo was quite successful, there is still some diseased tissue and this is my best chance to be cancer free. I feel positive about this after reading posts on this site,, especially from Cynthia. I am nervous about the surgery itself and the immediate aftermath. I am now sure I can handle the long term, it is the short term that worries me. thoughts anyone,?

PLK in NJ

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4 years 1 month ago #49299 by sara.anne
We will all be thinking of you and wishing you the very bestt! Please let us know how you are doing!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
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4 years 1 month ago #49285 by Plk
Thank you For your responses and just for being there! Over the few days that I have connected with this site, I have gotten more support and personal (not purely medical) information than in the past 6 months. Thank you for being here! I am meeting with my surgeon in mid September to decide on the surgery and set a date. Will be in touch after that, I am sure !

PLK in NJ

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4 years 1 month ago #49270 by Cynthia
Pik, You are very welcome. Let me know if you have any more question. And keep us updated, I am sorry you have to be here but welcome to our community.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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4 years 1 month ago #49267 by Plk
Dear Cynthia,
Thank you SOOO much. Your honest answers have been so helpful to me. I just found this site yesterday (after being diagnosed in February and finishing chemo in July) Am facing a RC. with an Indiana Pouch . Your response has been immensely helpful, thank you

PLK in NJ

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