Proposed solution for Neo incontinence

15 years 2 weeks ago - 15 years 2 weeks ago #25100 by Webs
Replied by Webs on topic Proposed solution for Neo incontinence
Have been looking all day for an instance when a women with a Neo has had this operation. Can't find it. Anybody heard of or know someone who has? I do not mind being the pioneer, but would feel more comfortable knowing someone else has tried this solution. :laugh:

Webs

P.S. Just found this www.ncbi.nlm.nih.gov/pubmed/15201778. That gives me pause.

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15 years 2 weeks ago #25099 by Betsy Mae
Replied by Betsy Mae on topic Proposed solution for Neo incontinence
Sounds like a sensible solution to me! Hope it can go ahead soon.

Anne
( From my hotel room using my I Phone)

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15 years 2 weeks ago #25096 by Julie
Replied by Julie on topic Proposed solution for Neo incontinence
Sounds like a good plan to me. I am pleased with my bladder lift and I would think it would be of benefit to you. I hope they agree that you could have one. Mine was done by my gynecologist who is much more familiar with the female bits than most urologists.

Volunteer Coordinator
ABLSC

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15 years 2 weeks ago #25091 by Patricia
Replied by Patricia on topic Proposed solution for Neo incontinence
Sounds like a plan to me...
www.urotoday.com/53/browse_categories/urologic_trauma_and_reconstruction/1345/15/105/
you know the drill...just register to get free access
Suck it up huh? Can't write my reply to that one...use your imagination!
Pat

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15 years 2 weeks ago - 15 years 2 weeks ago #25089 by Webs
Well I think by now most of you know that I am one of those women that is incontinent with the Neo-bladder. I try to limit myself to 64oz of liquid a day, try not to drink much after 6:00pm etc... Puts a crimp in cocktail time.:silly: I am the Queen of Kegals quite frankly I find myself doing them even when I am not thinking about it,:woohoo: None of it has helped! In fact my incontinence is getting worse.:angry:

I saw Doc V. today. He has talked with the surgeon who created my Neo, who basically said that I should continue what I am doing and suck it up. My words not his just his intention. Bless Doc V he does not think this is acceptable.

He believes that they should be able to do a sling like they do for women who still have their bladder and are incontinent. He will check with his associate who does 5 of these a week. He will also check with Doctor Roze? at UCLA who is doing a spiral sling. Either way they will have to do a pressure test on my bladder. If the pressure threshold is below 60 he thinks the spiral sling would be my best bet.

The regular sling is a piece of mesh that goes under the urethra and is tightened to lift the urethra up. The spiral is a piece of mesh that is looped around the urethra. I need to look into both of them more. Doc V has promised to get back to me no later than Monday, but will try to get back to me tomorrow.

Needless to say I am really hoping this is the solution, but am trying not to get my hopes up to high.

Webs

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