Just \"diagnosed\" yesterday - 37 and very scared

I am now taking Tramodol 50mg, Valiums, some kind of muscle relaxers, Vesicare. I know this sounds gross but if I urinate standing up in the shower I don't get the spasms as bad as if I just urinate on the toilet. I am having severe problems still and my belly is now very very full. I look pregnant. I am thinking of going back into the ER because of how much pain and the bloating I am having 4 days later. I have gained 7 pounds and it has to be fluid because I have hardly eaten anything. Have any of you experienced this? The pain is so severe it hurts me to walk. I am urinating but not as much as I think I should be.
I am kinda worried about a Perforation of the bladder but wouldn't the doctor have known when she did it? She told me I would be good as new come Monday but she is ever so wrong. What are the symptoms and have any of you ever experienced this? I am just in pain to no end. I am already almost out of pain pills. Any advice would be wonderful.

Thanks,
Mel

Thanks - I thankfully haven't had much pain (if any) at all since the day of the procedure. I still have the back and pelvic discomfort a bit, but it has been subsiding. My chest has been "heavy" for some time too, but I think that's pretty much all anxiety.

JD

Hello Mel and JD,

I just wanted to share what is working for me....for the spasms I am taking 20mg of Oxybutryn, I tried only 15mg but that didn't cut it.

For the pain the vicodin never did anything for me and also it makes me sick so now I get Tramodol 50mg. It works great but it takes about a 1/2 hour to hour to kick in. Last week for my BCG treatment I took it to late before going in and boy did I pay the price! So if the Vicodin isn't cutting it maybe try it out.

Best of luck to both of you, Warren.

Hi Mel - I've been thinking of you and I'm really sorry you're having those spasms and that your recovery has been rough thus far. Isn't there anything stronger they could give you for the spasms? They gave me Vicodin (had a couple) but I have tried not to take it since I got home b/c I heard it was very addictive. I've had the same general pelvic and lower back discomfort (although it has subsided a bit,) which still freaks me out.

I've been reading more than I ever cared to about this topic, but I think having some of the general facts, etc. has helped ease the stress a bit.

I have Monday-Wednesday off from work still this week and asked my Mom to come down and stay w/ us again for a couple of those days, since I'll likely get the labs back at some point during that time. Although my Doctor's said I'll be fine, I still keep obsessing over "what ifs" and I just hate the waiting.

It sounds like you have a supportive family, which helps a lot. Looks like we're both blessed with that.

Everyone I know has been telling me to try and "act normal" and even the Therapist lady I went to a couple of times now said that "pretending is good." Not sure I agree w/ the latter at all, but I got her point. In the interest of trying to act normal though, I took my wife and daughter out to the mall yesterday and followed my wife around as she looked for clothes and tried them all on. At that point, I definitely felt as though things were back to normal I told her that I'd buy her a giant purse once this ordeal is over and I can [hopefully] get back to being myself.

Let's both try and focus on the positives while we play the remainder of the waiting game...We're going to be ok. I know it.

JD

Jd
Hope your recovery is coming along well. Mine on the other hand has been very rough. I keep telling everyone that I think I was butchered from the inside out. I have been dealing with SEVERE bladder spasms that just cripple me. I have eaten so many pills I actually lost a day in there somewhere, lol. The doctors weren't too good on giving me the right meds but since my dad has been through BC he fixed me up at least enough that I can manage the pain somewhat. It's still very painful though. The only pill that I begged for they wouldn't give it to me because i was retaining after surgery. The waiting part is killing me too and to know she had to dig so deep worries me a little more but just keeping positive!

Talk to you soon,
Mel

Hi Mel - I'm really glad you're feeling better too. Sounds like the anxiety issues are something you're dealing with as well. My family has them too (my Mom has OCD, so I'm guessing that's a good part of why I do.)

This whole thing has reminded me just how "dependent" we become on the expertise and experiences of Doctors and how we simply take for granted that they all share the same level of commitment to their patients and fastidiousness for their crafts/specialties. I have a tough time when I cannot be [or feel] at least somewhat "in control" of things that happen, and this ordeal has really tested (and continues to test) my resolve and self-discipline.

I didn't get any pictures from the Doctor, but we looked up what he said it is, so I have a general idea.

I know we're both going to be ok. I actually told my boss today that I can't wait to get back to work...[although I do enjoy my job and the people w/ whom I work,] I never really thought I'd hear myself say that with such genuine conviction.

JD