My surgery was moved ahead to Monday. My wife and I met with my doctor before the surgery and he told us that while he cannot rule out cancer, in his years of experience, he can usually tell if a bladder tumor is malignant based on the appearance of the tumor during and after surgery. He cited being able to see "roots" as a cause for concern for cancer. He also told me if he had to cut deep that I would go home with a catheter which to me, would have been a bad sign seeing how the tumor didn't look big. I was thinking if I woke up with a catheter, that must have meant it had grown deep.
I had a late surgery and my doctor met with my wife just after surgery. This is also my wife's uro so we all have a great relationship. My wife told me the doctor came into the waiting room with a huge smile on his face. He told my wife he was extremely happy and that the tumor was very small and it did not take much to get it out. He said it wasn't deep at all (which the first thing I felt for when waking up was a catheter and I was relieved to NOT find one). He told my wife that while we must wait for the pathology reports to be certain, he feels the tumor is benign or at worse case, precancerous, or in his words, "something that could have turned into cancer if left untreated."
I am optimistic after hearing what he told my wife but I am still very nervous awaiting the pathology report. Please keep me in your prayers and pray that the doctor is right.
Hello Travis... just wanted to wish you the best of luck on Wednesday and sending hopes that you get the best possible outcome. Any growth that is "small" would indicate that it has been caught early, providing the best treatment outcomes.
Let us know how things go and please come back with any questions you may have, or just to talk. We all understand where you're coming from and are ready to listen anytime.
Best wishes... Catherine
Forum Moderator Team
TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
As George said, take a deep breath. I will add, take one day at a time because that is all you can really control.
You asked what else it could be? More stones, bladder cancer, an infection or I even know a few people that bleed microscopically (hematuria) with no known reason. You mentioned a small mass on your kidney. I would still want to know more about it. Many on this board might even suggest a second opinion at a large teaching hospital or big cancer center that specializes in bladder or kidney cancer because so many URO's see mostly prostatic cancer. I would want someone that see lots of these. Just my 2 cents worth. We are here for your questions as most of us have been parts or all of this. The good news; it is treatable/beatable.
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
5 years 5 months ago - 5 years 5 months ago#47850by DougG
Sorry you are in the "waiting" stage for surgery and your results from pathology afterwards. The waiting is so hard. IF you do have bladder cancer, it is not a death sentence. My husband was diagnosed in 2001 at the age of 44. He has had recurrences, but the bladder cancer has remained non-invasive. He has been cancer free for 6 years! There is HOPE! With bladder cancer, it is very important to see your uro for the scopes as prescribed. Like George said, deep breath. Please let us know how everything goes.
PS Mark is right about the second opinion with a uro from a group that specializes in bladder cancer. See http://bladdercancersupport.org/bladder-cancer-help/resources/treatment-center-finder on this website to help you locate a place close to you.
Thanks for the very encouraging words everyone. My mood has gotten extremely better but I still struggle with the what if thoughts daily. Giving my worries and fears and situation to God has really made a difference.
I keep hearing people say things like, "you don't even know if you have cancer" or "if it even is cancer." My question to those who know more than I do, what else could it be? Do benign tumors cause blood in your urine? I do have a growth on my kidney, could that have been a result of at least the microscopic blood from years past?
I went to a nutritionist and she mentioned that I could have had bladder stones or "crystals" that irritated my bladder causing the blood and the doctor just happened to find a bladder polyp.
My surgery was moved up two days to this Monday the 29th but the results wont be in till my doctors office opens back up on 1-5-14. Thank you everyone.