Hello all,
I've stumbled across this site while searching the internet (yeah I know, probably not a good idea) on bladder cancer. I'll give you a brief overview of my story:
I am a 32 year old husband and father of three girls 10,5 and 1! I love them all very much! A couple weeks ago I had small amounts of blood come out after I urinated. This scared me so I made an appointment at my uro who was recommended to my wife by her gyno. Apparently, he is highly recommended by many other doctors as well. I only know this by word of mouth with other patients while sitting in the waiting room because its a looooong wait to see him.
I previously seen this uto in 2009 due to pain in my testicle area which he said can sometimes because by something in the kidney hitting a nerve that is shared by the testicles. He was thinking kidney stones since my sister had them. At the time, I was only 26 and not really worried about my health and the pain stopped. The uro called to schedule an appointment to go over the results but I thought, "If it was bad, they would tell me." I was busy with a new child so I never went back.
This time, while seeing the uro, he said that in 09 I had NO stones but did have a very small growth on my right kidney. I also have microscopic blood in my urine (which I knew, that's why I was there). NOTE: In 2005 or 2006 I was told by my general doctor (no longer seeing) that there was a little bit of blood in my urine but not enough to worry him.
So, off to CT scan I went and then this time, I went back in for my results. Although, before my appointment, I slapped the CT images disk into my computer and had a look. Since I didn't know what I was looking at all I could see is that on one of the images, it looked like the contrast did not make it all the way down my right ureter and into my bladder. I was worried about that. I also could see the growth on my right kidney.
I went in for the results and the uro said the growth had doubled in size but still wasn't very big. He said that it was benign because there was no blood flowing through it. He also said that I did not have a blockage in my ureter even though the picture looked like it. He did say that he wanted to check my bladder to look for a blockage or in my mind, he wanted to check for a tumor to explain the blood in the urine.
During the cystoscopy he and I saw a small tumor inside my bladder. The doctor said it was small but in his words, "I think this might actually be a tumor." I asked, "cancer?" and he said, "yes."
I have a surgery scheduled to remove the tumor on 12/31/2014.
I have never been so scared in my life. Losing all the things I love, MY FAMILY have been terrifying me ever since. It is very difficult to work as I work nights and all I do is wonder if I will lose them all. I can't imaging my children growing up without their dad. They are my world. I look back at all the times I didn't eat dinner at the dinner table with them instead eating while being busy with my things. The walks I didn't take, the church services missed and so on. Its hard not to think about those things. I'm just so lost.
I know I shouldn't read a lot because the internet isn't always so accurate lol! Most things I read say that a benign bladder tumor is rare. It seems like its always malignant. Is that really so? I know my uro doesn't know its cancer until the path report but is it likely he's almost positive and that's why he said yes? Or is he just being careful of what he says? Should I be worried about the image that doesn't show the contrast going all the way to the bladder on my right kidney even though he said he knows what picture I'm talking about and there is NO blockage? Should I be worried that the kidney growth (his report to my doctor said cyst) be cancer. How can they really know without a biopsy (he says because CT shows no blood through it)? Uro's report to my doctor said CT showed my bladder was perfect. Then why didn't this tumor show up on CT scan?
Sorry for rambling, just very worried. This Christmas has been terrible.
Thanks,
Travis